BRCA1 breast screening

Hi - I have the BRCA1 gene and had breast cancer in 2018- my nearest hospital have been screening me every year since my mastectomy but they  now say they won’t screen annually anymore. I am 67 years old and now I’m thinking maybe I should have remaining boob removed if I’m not being screened. As a high risk person I thought I would continue having annual mammograms - can you tell me what I should expect from NHS - many thanks Teresa 

Parents
  • Hello and thanks for posting,

    I can appreciate that you are looking into this. 

    The NHS has good information about predictive genetic tests for cancer risk genes on their website which also includes other lifestyle measures to reduce your overall lifetime risk.

    Within that section is a link to current guidance on Brca1/2 by the NHS Trust Royal Marsden Hospital

    Do try and get a steer from your hospital breast care team/GP on this. It may be that you now need to be referred to your local NHS breast screening centre/mobile service for ongoing mammograms, and not directly by the hospital now. The above guidance suggests yearly screening by mammogram or MRI depending on your age and breast density. 

    You can search by postcode on this website for your local breast screening service.

    I hope that this helps, 

    Best wishes,

    Vanda

Reply
  • Hello and thanks for posting,

    I can appreciate that you are looking into this. 

    The NHS has good information about predictive genetic tests for cancer risk genes on their website which also includes other lifestyle measures to reduce your overall lifetime risk.

    Within that section is a link to current guidance on Brca1/2 by the NHS Trust Royal Marsden Hospital

    Do try and get a steer from your hospital breast care team/GP on this. It may be that you now need to be referred to your local NHS breast screening centre/mobile service for ongoing mammograms, and not directly by the hospital now. The above guidance suggests yearly screening by mammogram or MRI depending on your age and breast density. 

    You can search by postcode on this website for your local breast screening service.

    I hope that this helps, 

    Best wishes,

    Vanda

Children