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Oncotype test

Spoon100
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Hi there,

I have had an oncotype test which returned a score of 19. The booklet I was given says chemo is beneficial if your score is 25 or more unless you are 50 or under in which case there's some benefit to chemo if your score is over 16. I'm 49 but the oncologist flat refused to consider chemotherapy saying that new research suggests patients are being over treated.  He didn't actually have a discussion with me face to face, it was through the radiologist so I had no opportunity to ask questions.  I find it really difficult to accept this when patient information says one thing but your doctor says another.

Are you able to give me a steer on this please? 

Many thanks

  • Hello and thanks for posting

    I'm sorry to read about the confusion over your oncotype test result.

    You say that your oncologist mentioned new research suggesting that patients might be overtreated. This is based on recent studies showing that many patients with scores like yours do not see a significant benefit from chemotherapy, and the side effects and risks might outweigh the potential benefits.

    The best thing to do is to try and arrange a face to face appointment with your oncologist and/or breast care nurse. It's important to discuss your concerns directly with them and ask any questions you have.

    Some people like to ask for a second opinion with another oncology ( cancer) team to get another opinion. If this is something that you would like to do, you could ask your GP or current specialist to refer you. We have some general information about getting a second opinion on our website.

    I hope this reply helps a little. Give us a ring if you would like to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

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