I have recently been diagnosed with a net tumour and carcinoid Syndrome. The primary they believe ( results of Octreotide scan tomorrow) is in my upper bowel. It’s spread so far that they can see to lymph nodes and my liver. They say it’s Grade 1 slow growing.
I am very uncomfortable under my ribs and I feel breathless all the time and so very tired if I walk up stairs or do anything really. No one seems to have an answer for me why I’m so breathless and tired if this is such a low grade of cancer currently.
I have started the octreotide injection.