Hello Roy, sorry to hear about your diagnosis.  I think that you should contact your GP.  I know that you probably don't want to be thought of as a 'nuisance' but this is your health and your life at stake here, and sometimes we need to be a bit forthright, even with our doctors.  Good luck.  

Thanks for your reply, have just done as you advise by email, will await GP's comments.

Dear Roy thank you for your post

I am sorry to learn about your situation, and can understand you wanting to know more.

There are various treatment options available if your prostate cancer returns. These options depend on your previous treatment and the location of the cancer recurrence.

Waiting times are only guidelines and many hospitals are finding it hard to achieve them due to being overstretched with their resources.

You could speak to the PSA nurse or your GP  to ask when you will get an appointment to see the hospital specialist to discuss if further treatment is necessary.

The other option is to raise concerns with the hospital  PALS  (patient advice and liaison service) officer, who can look into this for you.

I hope you hear more soon.

Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9 am till 5 pm Monday to Friday.

Kind regards,

Tina

Hi Devonroy and thank you for your post.

I am sorry to learn that you have symptoms that are causing you concern.

You may find information regarding the potential side effects of hormone therapy on the Prostate Cancer UK website.

We acknowledge that hormone therapy can lead to a reduction in the size of the penis and testicles; however, there is no documentation indicating any changes in colour.

We would always advise anyone on treatment who is concerned about any new symptoms to contact their hospital specialist or GP.

This is most probably nothing to worry about but it is always best to get it checked.

You may be interested in joining a support group called Tackle.

It is a patient led charity for men with prostate cancer. There are groups up and down the country or you can start your own. It can help to talk to other men who have gone through similar treatments. You may find that they have tips on how they cope with similar side effects.

I really hope you know more soon and that everything will be okay for you.

Kind regards

Tina