Breast cancer so scared it’s spread

I have been diagnosed this week with stage 2 dcis and am waiting on her2  I have to have a mastectomy as there is cancerous calcification throughout my breast. Lymph node’s come back clear. I am so scared at every ache and pain I have in my body that it has spread. I can’t sleep and the fearof it spreading or already has is  causing so much anxiety. 

Parents
  • Hi Kat. I'm sorry to hear about your diagnosis.  The waiting and unknown is terrible. I'm exactly the same. Diagnosed with a 4cm grade 1 breast cancer on 19th April after finding the lump (im only 39) I had my MRI the week before last and my mammogram on Wednesday. So I'm just waiting to get the results. They've booked me in to see the consultant on 7 June which seems like an unreasonable time to wait. Surely the results should be quicker than that. 

    The unknown is horrid. I'm petrified it's spread. My own mum died from metastatic bc in 2019 but she was 71 when she died. I have 2 small girls and I'm  not ready to thrown in the towel yet. I'm trying to keep myself busy and distracted to take my mind off the waiting. X

  • Hi, I’m sorry about yours. It all feels surreal. I’m 44 two of my kids are grown up but I have a nearly four year old too and keep thinking I’m not joint to see her grow up. I know I have to be positive but just so scared. Like you trying to keep busy at work and with my little one. 
    I can’t believe you have to wait until the 7th June! Can i ask how come you had an mri I feel new to everything and don’t know much. Hope you don’t mind me asking xx

  • Hi. Of course I don't mind.  The MRI and mammogram is so they can find out how big it is and more details about it like blood supply etc.  And also they can tell if it's reached my lymph nodes. So it's all about planning what treatment I  will need. 

    I agree. 7th is a long time. I called the consultant's secretary today and she said that was the first available appointment which is nuts! It's beyond their 62 day target (from the referral) to have started treatment. 

    I'm petrified it's spreading in the meantime. They said they thought my lymp nodes looked OK at the breast clinic but I'm still petrified. 

    I'm really worried I'm not going to be here for my 4 and 6 year olds growing up.  Just trying to remain as positive as possible and keep pushing on.

    They've clearly got your plan already! Which is good news. Xx

Reply
  • Hi. Of course I don't mind.  The MRI and mammogram is so they can find out how big it is and more details about it like blood supply etc.  And also they can tell if it's reached my lymph nodes. So it's all about planning what treatment I  will need. 

    I agree. 7th is a long time. I called the consultant's secretary today and she said that was the first available appointment which is nuts! It's beyond their 62 day target (from the referral) to have started treatment. 

    I'm petrified it's spreading in the meantime. They said they thought my lymp nodes looked OK at the breast clinic but I'm still petrified. 

    I'm really worried I'm not going to be here for my 4 and 6 year olds growing up.  Just trying to remain as positive as possible and keep pushing on.

    They've clearly got your plan already! Which is good news. Xx

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