Worried not enough information given to me

Hi had my op nearly 2 years ago for melanoma cancer - had tumour removed sentinel node biopsy which they removed  so I was told and skin graft all letters recieved to me and my GP was everything good no mention of any cancer found in nodes so for 2+ years nearly thought was good went to hospital for my routine check up on 22/4 24 to be told there was a mistake in correspondence and microgrammes of cancer was found in the nodes but had been removed I’ve had no other checks only on the site where my melanoma was removed  so now I’m confused  should I have had follow ups to make sure cancer had not spread from the nodes now I’m being told to have a kidney function test done at my GPS  and not sure when have a brain and body scan arranged when I don’t know .no other conversation only an apology for the mix up I’m really confused why it’s took so long to find the mistake 

  • Hello Lozred and thanks for posting

    I am sorry to hear about your situation and imagine this is a worrying time for you.

    Unfortunately as no one here is involved in your care it is difficult to know or comment how this error occurred and how this may have affected you in the short and longer term. I suggest making some more enquiries and taking it up with the hospital involved. You may wish to raise a complaint which is within your rights, to understand more. The PALS department should be able to help you with this.

    In the meantime it sounds like the specialist team are now arranging some more tests to get a better understanding of your situation and I am sure once all the results are in they will discuss them with you.

    I hope you know more soon and get some answers to these questions and a clear plan moving forward.

    Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Best wishes,

    Naomi