Synovial sarcoma

My daughter (age42) has had a tumour in her knee removed ( above knee amputation). Now on 6months chemo. Realistically what does the future hold regarding cancer returning? Everyone is very positive however myself and daughter are quite cautious being the pessimists. What does the future hold?

  • Hello Tilly65, and thank you for posting.

    I am sorry to learn that your daughter had a recent above-knee amputation because of synovial sarcoma, this must be a difficult time.

    As nurses not involved in your daughter's care unfortunately we are unable to say whether or not the cancer may come back.

    It will depend on several factors such as the stage and grade of the cancer, the size of the cancer, and how far it has spread. If it has gone into nearby lymph nodes or elsewhere in the body. How abnormal the cancer cells are, how fast-growing they are,  how well the surgery went, and whether the doctors felt they had removed all the cancer.

    Your daughter will be followed up closely, and she must let the team at the hospital know whether she has any new persisting symptoms that are causing her concern. If it is possible with your daughter's permission, the best person to discuss this with would be her nurse specialist (CNS) as they know her situation.

    I hope this helps a little. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care, all the best

    Jemma