Womb cancer

My mum has stage 1b womb cancer, she is 76 years old. She had surgery, hysterectomy and has been asked if she wants to go ahead with chemo and radiotherapy.  She had a stroke 10 years ago and has rheumatoid arthritis. 

She is currently feeling well following her surgery.

She is finding it difficult to decide about further treatment as we are all so unsure about the side effects. We all worry that she might not be strong enough to withstand chemoradiotherapy. 

How do we make such a decision?

I would appreciate any information or help you can offer.

  • Hi. I’ve just had a biopsy and awaiting results for the same cancer. I’m younger (56)but if recommended I would have the treatment if the doctors advised it. I guess it might be possible to stop the treatment if it made her too unwell?

    Hope it all goes well & she makes a full & speedy recovery.

  • Offline in reply to Emma67

    Sorry to hear your news Emma and hope your results are good news. 

    It's such a hard decision to make. I worry my mum is too frail to withstand the treatment,  but I guess you are right that the treatment could be stopped. 

    We are going to request a meeting with the oncologist to ask more questions before making a final decision. 

    Thanks for your reply and all the best with your results.

  • I should also have mentioned that the cancer was identified post op as being Grade 3

  • Offline in reply to Emma67

    Sorry to hear that Emma. I hope your results are promising. We are going to request a meeting with the oncologist to ask more questions before making a final decision. 

    It's so hard, not knowing how unwell treatment might make her.

    So far clinicians have said that all actions are preventative and there is no sign of any cancer post op.

    It's all so confusing.

    I hope you get on well. 

  • Hello VickM and thanks for your post,

    I can understand how difficult these decisions must be to make.

    Every case is very individual and I am sure that her doctors will be advising your mum about whether chemotherapy will be in her best interests. Before each course of chemotherapy they will be assessing her bloods and how she copes with the treatment. If it looks like she is not managing the treatment they can reduce the dose or stop it altogether or even try a different treatment.

    As the other forum member said she can always stop the treatment if she is not coping. I would talk to your mum about what she wants

    I think that it is a good idea to have further questions answered if you manage to see the oncologist again. Your mum may also have a specialist nurse who may be able to address some of your concerns. 

    Before you talk to the oncologist you may find it helpful to read our pages on chemotherapy for womb cancer. It can help to have a general overview of the drugs that may be given. Everyone reacts to drugs in different ways.

    All the potential side effects are listed but it doesn't mean that your mum will get them.  Your mum may find that she copes quite well with the treatment. There are different drugs that can be given to help control some of the effects of the drugs such as sickness.

    We also have a page on preparing for chemotherapy treatment. which you and your mum may find helpful to read.

    You are both more then welcome to ring and talk any of this through with one of the helpline nurses. Our number is Freephone 0808 800 4040 and we are here Monday to Friday 9 am to 5 pm.

    All the best,

    Catherine

  • Dear Catherine 

    Thank you so much for your response which is incredibly helpful and supportive. 

    We have arranged an appointment withe the oncologist for Monday 8th April and have compiled some questions we all feel would be helpful for my mum in aiding her to make a decision regarding treatment. 

    Hopefully following this, she will feel more able to decide what she thinks is best for her.

    Thank you

    Vicky.

  • Hi 

    I’m having my biopsy on Monday. May I ask if you had a scan?

  • Hi Charlotte

    I had an internal and external scan and  then a pipelle biopsy at the same appointment. They did the scans first to see whether or not a biopsy was needed - they measured the thickness of the endometrium. Hope that helps and all goes well on Monday.

  • Thank you!

    do you know what your endometrium thickness was.

  • Offline in reply to VickM

    How is your mum getting on? Has she started treatment?
    I finally had my results - after 5 weeks. Received a letter telling me that it was clear (big sigh of relief) followed by another later a few days later telling me that they wanted me to go in for a hystercopy just to make sure (I confess I cried a bit having thought it was all over!). Going in on the 21st May.