Just met with my Oncologist and it’s been confirmed that I have invasive carsinoma of non- specific type. I have never been so scared in my life can anyone give me some advice? Or personal experience?
Hi, so sorry to hear about your diagnosis, it is so scary to hear this news. I was diagnosed with invasive ductal carcinoma in January and it feels like an emotional roller coaster. Special care nurses and macmillan nurses have been great and are always available to give reassurance. I am due to start chemo on Monday and I'm feeling a bit apprehensive at the moment. Always here if you need a chat. Xx
Luckily my husband is a very positive person, I try my best to follow his lead, not always easy though. I'm the worrier in the house, which can be exhausting, so I do try and keep busy. I've been focusing on eating as healthy as possible leading up to treatment. I feel that if I'm in the best shape I can be, it'll give me a better chance to fight this thing. I want to be around to see my grandkids grow up. This week is a little tough, as although I want to get the treatment started, I'm really apprehensive about all the side effects. I don't even feel ill at the moment, but of course that will change.i have gone a bit mad spring cleaning the house during the last week, to distract myself. I've cleaned the oven, washed curtains and cleaned windows, jobs I may not feel like doing in the coming weeks. I've also got organised with all the things I might need during treatment. Bought myself a smoothie maker, in case my mouth is sore. Neck pillow to use during treatment. My son has helped me put music on my phone and I bought a set of headphones. Got my hair cut short yesterday, thought it would be easier to cope with mentally, when losing it.. Also went to the wig shop and chose a wig that I'm happy with and bought a couple of hats online. I've decided to try and get out for a walk each day after treatment, even if it's just a short one. Must be better than moping about feeling sorry for myself. Will have to see how that goes! I wish you good luck with everything, I'm happy to keep in touch.xx
Hi Gail, just looked at my notes to double check. I have two invasive ductal carcinomas, one with lobular pattern and high grade DCIS. Further biopsy showed low grade cells in breast tissue, also it's reached sentinel lymph node. I am Er Positive and also HER2 Positive, so will be on Herceptin. My chemo is EC-T, 3 cycles of EC starting on Monday, followed by the T part (Docetaxel) for 4 cycles. I'm more concerned about the side effects of the Docetaxel. Will then need mastectomy, radiotherapy and will be on hormone blockers for 5-10 years. Have they given you any idea of a treatment plan yet?
Hi Gail, just looked at my notes to double check. I have two invasive ductal carcinomas, one with lobular pattern and high grade DCIS. Further biopsy showed low grade cells in breast tissue, also it's reached sentinel lymph node. I am Er Positive and also HER2 Positive, so will be on Herceptin. My chemo is EC-T, 3 cycles of EC starting on Monday, followed by the T part (Docetaxel) for 4 cycles. I'm more concerned about the side effects of the Docetaxel. Will then need mastectomy, radiotherapy and will be on hormone blockers for 5-10 years. Have they given you any idea of a treatment plan yet?
It's all a bit confusing really. I've got one letter saying I'm Er positive and HER2 positive. Another previous letter says one mass is grade 3 invasive ductal carcinoma plus high grade DCIS ER8, PR8. Other mass grade 2 invasive ductal carcinoma with high grade DCIS, ER8. At this time was still waiting for HER2 results, which I now know is positive. Bit confused as to whether I'm PR positive or not. I'll have to ask someone.
I was wondering whether to call or not. I suppose as long as they know what I've got, that's all that matters. Just wondering if I should wait and just ask at one of my appointment. Each time I phone about something, I sit for half an hour trying to work out what to say, to explain exactly what I want to know. It can be so draining sometimes. Especially as one letter states ER or PR with a number next to it. The other letter states ER positive and doesn't mention PR. How do I work out what to say? Will probably end up confusing the whole issue. Might be better to talk to someone face to face. I'm going to the hospital tomorrow for blood test, might pop into macmillan centre, see if anyone in there might be able to explain it to me. Let me know how you get on if you phone tomorrow. Xx
