Prostate cancer and bone mets with a low PSA?

I'm asking for a close family friend. He had locally advanced prostate cancer diagnosis a year and two months ago. A bone scan showed nothing there, but he had one lymph node tumour. He has had hormone treatment and radiotherapy. His last blood test showed his PSA was only 3.8. However, in recent weeks he has gone down hill rapidly. He has almost constant lower back and hip pain and now rib tenderness. He had night sweats last night and we are all very concerned. My query really is, would it really be possible for it to have spread to bones in such a short amount of time and would his PSA be that low? I feel like no matter what he says to the GP, he is fobbed off and despite speaking to 111 today and being sent to a walk in centre, he's been sent back home with basic pain relief. His oncologist is also not really doing anything in any hurry. 

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  • Hello Vicki_76 and a warm welcome to the forum though sorry you have to be here. I too have LAPc, my PSA is 0.24 ng/ml. Like your friend i have had RT and HT and my cancer still spread, so it is possible your friends has, and you are right to be concerned about the pain in his hip, rib and back as any bone pain must be reported to your oncologist, they usually ask you to be informed. Does your friend have a cancer nurse specialist you can call, she will be part of the team overseeing treatment and is much easier to contact than the doctors, If you are unable to get in touch call PALS patient advice and liaison service at the hospital. take care.

    Eddie

  • Hi Eddie

    So my mum's partner has been diagnosed with malignant spinal cord compression. They think they may have missed a tumour in his spine when he was diagnosed over a year ago. Based on this and him being stage 4 now, do you know what kind of treatment he might be looking at now? 

    Thanks

  • Hi Vicki_76, I am sorry to hear your mums partner has MSCC, Vicki as I don't have your mums friends medical notes and i am not a professional, I would only be guessing, All i can say as my stats are a little worse, and i have had 3 scans on my lower spine for possible MSCC, and my only treatment will be palliative when the pain gets too much. As for MSCC, there is a lady on the forum who's husband has had MSCC for some time who you could talk too. her username is Prim-rose, take care.

    Eddie

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  • Hi Vicki_76, I am sorry to hear your mums partner has MSCC, Vicki as I don't have your mums friends medical notes and i am not a professional, I would only be guessing, All i can say as my stats are a little worse, and i have had 3 scans on my lower spine for possible MSCC, and my only treatment will be palliative when the pain gets too much. As for MSCC, there is a lady on the forum who's husband has had MSCC for some time who you could talk too. her username is Prim-rose, take care.

    Eddie

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