Indeterminate Thyroid Nodule

Hello,

Has anyone else had experience with being sent for a CT scan after a thyroid nodule biopsy prior to having results given? 

A little background. I noticed an enlarged lymph node just below my left ear, painless to touch and hard. I kept an eye on it for a few months as I know they can sometimes stay enlarged for a while and wanted to be sure It wasn't going to clear up by itself.

Following GP appointment I was referred me for 2ww, i had full blodd count shortly after which came back normal and I had my neck examined a couple of weeks later, followed by an ultrasound 2 days after.

At first, the sonographer said the lymph nodes looked okay, but a little enlarged, and i thought it was all looking promising, until he scanned my thyroid and said there was an indeterminate nodule around the size of a conker/50p. I was shocked as I had no idea. I had 5 fine needle aspirations taken, 2 of the nodule, 1 of the nearest lymph nodes and 1 of each nodule just below my ear lobes which could be felt under the skin. 

He told me the name of my consultant and gave me the number to call in 7-10 days. 

So on day 7 (yesterday) I phoned and spoke to the secretary. she was very vague and said "oh I think I recognise the name, I think he wants to book you in for clinic, but I'm not sure if he wants to see you or for someone else to see you. Can I take your phone number and I'll ask and call you back". She didn't call back and when I phoned today to check, they said she wasn't back in until Monday :( so now I'm in limbo. 

In the meantime, I got a call on a private number expecting the secretary, but it's from the CT department in another hospital wanting to book me in on saturday morning (2 days time). My mind is racing. Does this mean I do have cancer and they want to check if its spread? Shouldn't I have had an appointment or atleast a phonecall with the consultant to discuss the results of the biopsy and what alwas happening and why?

Maybe this is all just routine, but I've basically convinced myself it's cancer anyway and I'd just rather have a yes or no answer right now so I can have time to accept it.

Thank you for taking the time to read this, If you have any similar situations please could you let me know your story and the outcomes of your tests? Thank you x  

  • Hello and thank you for posting.

    I'm so sorry you are going through this, but I'm not sure if we are going to be able to help. It is difficult to say what may be happening, as we aren't part of your care team.

    It is not unusual to use a CT scan, alongside biopsy results to get a clearer picture of what might be happening. Like the pieces of a jigsaw, the doctors need to work out exactly what is going on for you.

    Once all scan and test results are gathered and discussed, and then you would be seen by specialist to go through anything that has been found.

    You have asked others to come forward with their own stories and outcomes, but do remember everyone's experiences are going to be individual to them. 

    Take care and I hope you know more soon. If you want to talk things through with one of the nurses on our helpline the number is Freephone 0808 800 4040. and the lines are open from 9am till 5pm Monday to Friday.

    Sarah