Lumpectomy and lymph node removal

Hello, 

I had a lumpectomy and lymph gland removal in December 2023.  Surgeon successfully removed a 9mm lump, but was waiting for the results of lymph node testing.

I was informed that the lymph node tissue was sent to America to be tested, so at my January post op talks with the surgeon, he hadn't had the results back yet.  He said that it was £3,000 to send tissue samples off to a lab in America, to be tested, as opposed to up to £35,000 for chemo.

I see him again early February, hopefully for test results and to see whether I go onto radiotherapy or chemo.

My friend had the exact same operation as I did, 2 weeks later than me, same surgeon, same hospital, but she has already had all her results back and now awaits radiotherapy.

Why have my tissue samples been sent to America?  Apart from the above reason?  How come my friend has had her result and I haven't?    Weren't her tissue samples sent to America, too?????

Thanks for listening,

Fran

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  • Hi Fran,

    A very warm welcome to our forum.

    I am glad to hear that you have had your surgery and hope that you are recovering well. I can understand your puzzlement at the fact that your friend is now ahead of you on her cancer journey and hasn't needed to sent any tissue samples to America.  I am not a doctor, but I expect that you may both have different types of cancer. It appears that your friend didn't need chemo, whereas it is being considered for you.

    The Oncotype DX test predicts how likely your cancer is to spread after surgery and determines just how effective chemo would be in your treatment. It gives the result in percentages. The lower the percentage, the less effective chemo will be. If they are very low, people often decide to stick to radiotherapy alone, whereas, if they're high, then you'll have a better chance with chemo, or a combination of chemo and radiotherapy. 

    I trust that this helps to explain the difference between yours and your friend's treatment and I hope that all the results are back by the time you see your consultant again.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi Fran,

    Have you had any word of your test results yet?

    Kind regards,

    Jolamine xx

  • Hello Jolamine,  

    Am seeing surgeon for talks again on Wednesday 7th Feb, when hopefully, he'll have the results.   Then decide on radio or chemo.

    I watched an informative video, taken in my local hosp cancer unit, ref radio procedures and scared myself enormously.  Boyfriend said it has to be gone through and not to worry.  I know, I know it has to be gone through and many people are in bigger boats than I am, but still very scared right now.

    Need to get the results out of the way, being in limbo not knowing what's what is awful.

    Thank you so much for asking about me. 

    Regards,

    Fran x

  • Hello,

    I think I've typed a reply to your question, but it hasn't shown up yet.   Maybe I pressed the wrong button?  Rubbish at these chat forum things!

    I see the surgeon for talks and hopefully results this Wednesday 7th Feb, then maybe I can move on from this 'limbo' situation I've been in since early Jan.

    Will try and work out how to let you know!

    Regards

    Fran and thanks so much for thinking of me.

Reply
  • Hello,

    I think I've typed a reply to your question, but it hasn't shown up yet.   Maybe I pressed the wrong button?  Rubbish at these chat forum things!

    I see the surgeon for talks and hopefully results this Wednesday 7th Feb, then maybe I can move on from this 'limbo' situation I've been in since early Jan.

    Will try and work out how to let you know!

    Regards

    Fran and thanks so much for thinking of me.

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