We need help

My mother in law has been diagnosed with pancreatic cancer. We had a terrible experience. We still waiting for her first oncologist appointment which is this Friday, her journey started 4 weeks ago and the diagnosis is a massive shock. I feel she deteriorated quickly this last week, she on paracetamol is there anything else we can give her. She very breathless, very tired and lethargic ,hardly eating, in pain, we haven’t see dietician. She only eating puréed food. We not really getting any support as of yet. 

  • I am really sorry to hear that your mum is so poorly and that you aren’t having any support.So when you were given the diagnosis ,you weren’t given any numbers you can call for any support ? I would give your mums GP a ring and see if they can give her stronger painkillers as well as some supplements that she can take if her appetite is poor.. It’s not really acceptable that you seem to be left in limbo til the oncology appointment. Take care now and let us know how you get on xxx

  • Hello and thank you for contacting us.

    I'm sorry to hear about your mother in law, she sounds like she is quite poorly.

    Hopefully, you will find out more this Friday at the appointment. You can ask for advice on diet from a hospital dietician. Her GP can also prescribe some supplement drinks. Her GP or hospital team can prescribe painkillers to help her.

    There are teams who are used to looking after patients like your mother in law. They are called Macmillan or palliative care teams, and they focus on the symptoms that someone has rather than a diagnosis to make sure she is feeling comfortable and having a good quality of life. This team work alongside the GP and District Nurses in the community so she can stay in her own environment if that is what she wants. Her GP, or hospital team, will refer her if they haven't already, so it is worth following up. 

    I've placed here a link talking more about these teams.

    https://www.cancerresearchuk.org/about-cancer/coping/practically/support-at-home

    It can be very hard on those around your mother in law, and there is information here, 

    https://www.cancerresearchuk.org/about-cancer/coping/family-friends-caregivers/how-support-someone-with-cancer

    You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care,

    Vanda

  • Thank you for your reply’s, we have lost her on Thursday, we so upset and angry that we didn’t get the support and help she needed. She didn’t have the peaceful death. We were left alone coping we her, she was so scared and Frightened. We were let down by everybody 

    thank you for your advice 

  • Thank you for your reply’s, we have lost her on Thursday, we so upset and angry that we didn’t get the support and help she needed. She didn’t have the peaceful death. We were left alone coping we her, she was so scared and Frightened. We were let down by everybody 

    thank you for your advice 

  • Hello there

    We are so very sorry to hear of your loss and appreciate what a difficult time this must be for all the family.

    When and only once you feel ready to do so you may choose to raise a complaint with the health care services involved to investigate what has gone on and to try and give you some answers to any failings.

    Do get back in touch if need be but in the meantime take care of yourself.

    Best wishes

    Naomi

  • I am terribly sorry that she died so soon and you have been let down too.   I also agree with Naomi that you make an official complaint to your Heathboard and ombudsman when you are ready .

    At least the next person and family will hopefully benefit from it .Take care now xxx