Grade 2 glioma

My daughter was diagnosed with a stage 2 glioma back in April this year, she’s 24 ,  she had 90% of the tumour removed and has had 30 bouts of radiotherapy, she’s been having focal seizures which the oncologists say ‘are normal’ she’s on 1000mg kept a and 10 mg clobazam, as well as 4 steroids a day.  My worry is as a parent that she’s struggling to walk unaided and is constantly tired and spaced out , she has a follow up appointment on the 7th august , I would like to know if this is normal for a recovery 

Parents
  • Hello, so sorry to hear your daughters story. it is VERY similar to my own. I am 33 yo female, prev healthy. Grade 2 glioma, 90% resected and waiting for an oncology appt which keeps getting pushed back. I know thats a hopeful sign but im still worried. Post op o lost the movement and power of all of the left hand side of my body, it has def MASSIVELY improved. Iwas a very active outdoors person so am having to readjust a little for now. I am exhausted and sleepy all the time, a few little side effects but again waiting for appts. It's very difficult to be so patient.

    Hope she is keeping well and had a lovely Christmas :)

Reply
  • Hello, so sorry to hear your daughters story. it is VERY similar to my own. I am 33 yo female, prev healthy. Grade 2 glioma, 90% resected and waiting for an oncology appt which keeps getting pushed back. I know thats a hopeful sign but im still worried. Post op o lost the movement and power of all of the left hand side of my body, it has def MASSIVELY improved. Iwas a very active outdoors person so am having to readjust a little for now. I am exhausted and sleepy all the time, a few little side effects but again waiting for appts. It's very difficult to be so patient.

    Hope she is keeping well and had a lovely Christmas :)

Children
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