Will I ever be sorted out!

FormerMember
FormerMember


My Clinical Nurse Specialist phoned me this morning,
PET scan results: There is a definite tumour on my kidney (which we already know) and I've got to have a biopsy to see if it's malignant or not.
It's on the 2ww pathway and I should get an appointment in a couple of weeks.
There is mild lymph node activity around the kidney as well, also known
I've also now got to be referred to lower GI to have a sigmoidoscopy to evaluate what they think is a polyp in my bowel.....I should get an appt for that at some point soon too  .


Will all of this ever end and a treatment plan put in place? I feel like I'm being passed around the hospital like a piece of meat :'(


So the waiting game continues and I'm slowly losing my mind

  • Hello KittySlim and thanks for posting,

    I can well imagine your frustration with these PET scan results as they don't seem to have changed what was already known (it is good that they didn't) but remember that might not have been the case, so you are in fact a step forward although I can understand it might not feel that way.

    Waiting for tests and the results is inevitably a nerve-wracking time. I think many people feel vulnerable and helpless when being investigated for cancer and more so because of having to submit to being in the system and going with it. It is usually easier to cope with any challenging situation when you have a timeframe to work with and harder when things are up in the air. 

    It is important for doctors to have the information they need before they plan any treatment. A treatment plan will be put in place once they are in a position to be able to put one together. 

    While you are in the thick of it, try to focus on ways of coping with the waiting and uncertainty. Do what works for you to distract your mind and relieve some of the stress.  Talk to your GP and/or hospital team to see what they can recommend and ask if there are any support services in your local area that you could tap into.

    You are welcome to give us a call on  Freephone 0808 800 4040 if you want to talk anything over, we are around from 9-5, weekdays.

    Hang on in there KittySlim and try not to don't lose faith, I hope someone else comes along and posts with their experiences as well, 

    Wishing you the best, 

    Julia  

  • It sounds awful. Have you been told what would happen if it's malignant or not?

  • FormerMember
    FormerMember in reply to Mary.

    They generally just remove polyps at the time of the procedure then get them tested.

    I haven't actually seen a doctor since 31st May ! Just getting passed from pillar to post at the moment :sad: