CA-125 rising

Hi I am 31 year female with PCOS. I was referred to gynae for abdominal pain and bloating/swelling. Prior to this my gp tested my ca125 levels - this was actually done, ironically to put my mind at rest! My level was 70 on the 17th of April and was repeated yesterday showing an increase to 82. I am beside myself with worry. My last ultrasound showed normal ovaries but my fear is the cancer is so small it cannot be detected on an ulatrsound and that my levels are going to continue to rise. I have eliminated the other benign reasons why the ca125 could be high. Would appreciate any advice or guindance from someone that's been through this xx

Parents
  • Hello, I hope you’re well? What was the upshot of your raised CA125 levels? My mum had a pain in her abdomen c11 months ago, which then came along with raised levels, it wasn’t until she had a CT scan that it showed she had peritoneal cancer, which is treated in the same way as ovarian, her twin had ovarian cancer at the same time. Since then she has had 8 sessions of chemo, de bulking surgery and is now on immunotherapy. She’s thankfully doing well at the moment. 


    I hope you got the outcome you hoped for…

  • Hi,

    im 26, I had the ca125 done without knowing after I went to the doctor about changes in bowels. It came back at 50 so I was referred for an urgent ultrasound which came back clear. Followed by similar ca125 levels 3 months later, another clear ultrasound and a repeat ca125 test 3 months after this. still elevated so had CT , was clear

Reply
  • Hi,

    im 26, I had the ca125 done without knowing after I went to the doctor about changes in bowels. It came back at 50 so I was referred for an urgent ultrasound which came back clear. Followed by similar ca125 levels 3 months later, another clear ultrasound and a repeat ca125 test 3 months after this. still elevated so had CT , was clear

Children