CA-125 rising

Hi I am 31 year female with PCOS. I was referred to gynae for abdominal pain and bloating/swelling. Prior to this my gp tested my ca125 levels - this was actually done, ironically to put my mind at rest! My level was 70 on the 17th of April and was repeated yesterday showing an increase to 82. I am beside myself with worry. My last ultrasound showed normal ovaries but my fear is the cancer is so small it cannot be detected on an ulatrsound and that my levels are going to continue to rise. I have eliminated the other benign reasons why the ca125 could be high. Would appreciate any advice or guindance from someone that's been through this xx

Parents
  • Hi Laura,

    I hope you are doing ok, did you manage to find any answers for your elevated ca125 levels? I’m currently going through something similar. I have had consistently raised levels now for 9 months and clear scans. Have had ultrasound and CT but nothing other than a small fibroid has shown up 

Reply
  • Hi Laura,

    I hope you are doing ok, did you manage to find any answers for your elevated ca125 levels? I’m currently going through something similar. I have had consistently raised levels now for 9 months and clear scans. Have had ultrasound and CT but nothing other than a small fibroid has shown up 

Children
  • Hi JS, thanks for posting.

    I am replying as its been a little while since Laura has posted and wanted to make sure you get an answer.

    I am sorry that you are having these worries about a raised CA 125 result, but good to hear that your CT scan was clear.

    Although other peoples stories may seem similar, everyone's situation is quite individual to them. It can be hard to think about anything else when waiting for tests and results but it is best to try and not google for an answer.

    Ca125 levels can be raised for a number of reasons, as it measures any inflammation in a woman's pelvic area which can be due to polycystic ovaries, endometriosis and fibroids. It would be more unusual for it to be a cancer in your age range, but it is still important for the doctors to investigate.

    Take care JS and hopefully you will get all the answers you need soon. If you want to talk things through with one of the nurses on our helpline the number to call is Freephone 0808 800 4040. The lines are open from 9am till 5pm, Monday to Friday.

    Sarah.