Hello and thank you for your post,

I am sorry to hear about your husband's diagnosis and I can appreciate your concern. However, please remember that he has started treatment already- he is having hormonal treatment. This can shrink the cancer. So, I think that the specialist team he is under want to see what effect this treatment has on his cancer before deciding on the next treatment.  

Your husband may have a prostate cancer nurse specialist you could both speak to and to ask about his treatment plan, leave a message on their phone and they will get back to you.

It might be helpful for you both to read the information about prostate cancer and how it is treated on our website, you can see it here 

You would also be very welcome to get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Take care,

Caroline 

Thank you so much for reply. I would like him to have a pet scan. Can I insist that he does, they never even offered one??

Hi i was diagnosed feb 2016, T3b  N1  M1b, gleason 8 .prostate cancer gone to lymph node's pelvis spine ribs and a lung, was classed as uncurable two years later palative care, im still here very stubborn and positive. Started on hormone therapy tablets, then scans not pet, x-ray ultrasound biopsy over 4 months then chemotherapy.. had first injection couple of weeks before chemo. 

My original psa was 1581,after 2 years 0.3 Rose slowly 2 years then jumped to 67 so stronger hormone therapy, beginning this year o.6, just now 9.7 oncologist checking options im managing ok and a carer for my darling wife who has alzimers and parkinsons and other brain issues. 

We manage ok despite our problems. Last few days i got bitten again by my uninvited guest on my spine so oncologist arranging radiotherapy to ease pain. 

If i can help anyway please ask, remember im not medically trained just my experience and talking to others. 

Billy 

Ah billy, thank you so much for your post. God your a strong man& looking after your wife too. 
my very very best wishes

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