Advice regarding urgent referral/waiting for appointment

I posted this in the pre-diagnosis forum also, but wondered if  this may be a better place to ask. I went to the doctor 2 weeks ago as I saw blood in my stools - bright red streaks sometimes on the paper and sometimes in the stools like a ripple. The faecal test showed it was blood so my GP referred me fast track for suspected bowel cancer. I still have not got an appointment through in the post (so they are going beyond the two week window). I called the colorectal secretary at my local hospital and she said there is a backlog, but the usual route would be that I would have an appointment with a colorectal nurse (once I get the appointment!) and they would then decide whether I should have a colonoscopy or something else. Given that I haven't got an appointment yet and given the NHS backlog, I am really worried that I will have to wait a long time before even getting a diagnosis or understanding what is causing the bleeding. This is such a worrying time as we are constantly told with cancer time is of the essence.

However, my mother-in-law has offered to pay to go private, but I have seen how expensive that is. If I had a consultation and, say a colonsocopy and 'if' the suggestion was that it was probably a tumour/cancer - I don't think my mother in law could stretch to anything further on private. In that case, does anyone know: could I then have treatment on the NHS and would it make a difference timewise (would there be a delay getting back into the NHS). I just don't know what to do - whether to wait for my NHS appointment or gt a consultation privately. Any advice would be most welcome!! 

Parents
  • Hello and thanks for your post,

    I am sorry to hear about your long wait for treatment. I can only imagine how frustrating this must be for you.

    It may help to speed the process up to see a private colorectal surgeon and then possibly  have a colonoscopy if that is what they advise so you can hopefully you can find out the cause of your symptoms.

    A lot of colorectal surgeons practice in the NHS and the private sector and the best thing would be to switch from private to the NHS with the same person. This doesn't always work but you could try.

    To find out how much it would all cost have a look at Private Health Care here

    You could have a look at colorectal surgeons in your area and where they practice in the NHS.

    The NHS are duty bound to treat you regardless of the referral route that you take. Your private consultant will write a letter to your GP telling them the situation and they'll probably copy in the NHS specialist team at the hospital too if this is necessary.

    There is more information on the NHS website about how your care will be affected if you have some treatments done privately. Have a look here

    I do hope some of these links may help and that you know more about your situation soon.

    If you want to ring and speak to one of the helpline nurses then you are more then welcome to do so. Our number is Freephone 0808 800 4040 and we are here monday to Friday 9am to 5pm.

    All the Best,

    Catherine

Reply
  • Hello and thanks for your post,

    I am sorry to hear about your long wait for treatment. I can only imagine how frustrating this must be for you.

    It may help to speed the process up to see a private colorectal surgeon and then possibly  have a colonoscopy if that is what they advise so you can hopefully you can find out the cause of your symptoms.

    A lot of colorectal surgeons practice in the NHS and the private sector and the best thing would be to switch from private to the NHS with the same person. This doesn't always work but you could try.

    To find out how much it would all cost have a look at Private Health Care here

    You could have a look at colorectal surgeons in your area and where they practice in the NHS.

    The NHS are duty bound to treat you regardless of the referral route that you take. Your private consultant will write a letter to your GP telling them the situation and they'll probably copy in the NHS specialist team at the hospital too if this is necessary.

    There is more information on the NHS website about how your care will be affected if you have some treatments done privately. Have a look here

    I do hope some of these links may help and that you know more about your situation soon.

    If you want to ring and speak to one of the helpline nurses then you are more then welcome to do so. Our number is Freephone 0808 800 4040 and we are here monday to Friday 9am to 5pm.

    All the Best,

    Catherine

Children