NHS support & Timelines

Recently my mother was diagnosed with Lung cancer, it all started 16 weeks ago where she collapsed at home, around end of may she was told it was lung cancer, from then we have had a pet scan & biopsy, however 3 weeks ago we were told the biopsy was inconclusive and need another however it seems impossible to get a date for it? 
 

I thought there was a timeline for all of this, it seems to be moving so slowly, I don't understand, also we are told people are on holidays and can't get answers. This seems obscene to me. How can I move this forward?
 

Any advice would be appreciated. 

Parents
  • Hello and thanks for your post,

    I am sorry to hear about your mum's situation and I can understand that waiting for results can be extremely stressful.

    There are targets for diagnosing patient and waiting times after diagnosis which hospitals try their best to adhere to. You can see the information on our website here

    It is not uncommon to have a repeat biopsy and depending on the result it will reflect what treatment she is offered. 

    I can understand your frustration particularly as you haven't even got a date to aim for and you feel like you are being kept in the dark. I am not sure whether you have contacted the consultants secretary, or if you have heard about PALS (Patient Advice and Liaison Service) which you can read about here

    They may be able to at least look in to it for you.

    If you feel that you would like to make a complaint you could have a look at Health Watch which has some advice about how you can do this here

    I am not sure whether your mother has been able to discuss this with her GP and whether they are able to help move it forward. 

    If you did want to consider getting a biopsy done privately this may speed things up but unfortunately at a cost. Your mother would need to get a referral from her specialist or GP. If you put in her postcode and the procedure that needs to be done in to Private Health UK it can give you an indication of cost. Have a look here

    I can understand that this situation is not ideal but unfortunately we are regularly hearing from patients about the shortage of staff in the NHS and the struggle to make targets happen.

    I do hope that you know more soon.

    If you feel that it would be helpful to discuss any of this with the helpline nurses then do give us a ring. We are here Monday to Friday, 9am to 5pm, Freephone 0808 800 4040

    Best Wishes,

    Catherine

Reply
  • Hello and thanks for your post,

    I am sorry to hear about your mum's situation and I can understand that waiting for results can be extremely stressful.

    There are targets for diagnosing patient and waiting times after diagnosis which hospitals try their best to adhere to. You can see the information on our website here

    It is not uncommon to have a repeat biopsy and depending on the result it will reflect what treatment she is offered. 

    I can understand your frustration particularly as you haven't even got a date to aim for and you feel like you are being kept in the dark. I am not sure whether you have contacted the consultants secretary, or if you have heard about PALS (Patient Advice and Liaison Service) which you can read about here

    They may be able to at least look in to it for you.

    If you feel that you would like to make a complaint you could have a look at Health Watch which has some advice about how you can do this here

    I am not sure whether your mother has been able to discuss this with her GP and whether they are able to help move it forward. 

    If you did want to consider getting a biopsy done privately this may speed things up but unfortunately at a cost. Your mother would need to get a referral from her specialist or GP. If you put in her postcode and the procedure that needs to be done in to Private Health UK it can give you an indication of cost. Have a look here

    I can understand that this situation is not ideal but unfortunately we are regularly hearing from patients about the shortage of staff in the NHS and the struggle to make targets happen.

    I do hope that you know more soon.

    If you feel that it would be helpful to discuss any of this with the helpline nurses then do give us a ring. We are here Monday to Friday, 9am to 5pm, Freephone 0808 800 4040

    Best Wishes,

    Catherine

Children
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