Carol has given good advice. Can I add in that a lot of things have gone pear-shaped in respiratory world especially. Covid has an awful lot to answer for. You might want to call specialist lung helpline – think BritishLungFoundation may have teamed up with Asthma people so now Asthma and Lung UK?? (I just checked and special message saying helpline not available until tomorrow morning). There is also the Roy Castle Lung Foundation, which offers specialist info. I have been given so much specialist nurse advice and up-to-date info on protocols, which unfortunately seem to keep changing. It will help you pull together all the points you need to make and also flag up who best to approach in first instance. PALs are great for telling you how to complain, so Carol is correct to point you there. BritishLungFoundation (or whatever it is now) should be able to help with regard to what procedures are/aren't being done currently. Some stopped completely during the pandemic. It really was a horrible time for anyone with lung issues. Still is with another Covid wave taking over, I guess. I'd be really interested to know how you get on if you do call a specialist lung helpline and what they have to say about this. It will help others going through what you are going through now. I wish you luck and hope things speed up for you soon. xx

Carol has given good advice. Can I add in that a lot of things have gone pear-shaped in respiratory world especially. Covid has an awful lot to answer for. You might want to call specialist lung helpline – think BritishLungFoundation may have teamed up with Asthma people so now Asthma and Lung UK?? (I just checked and special message saying helpline not available until tomorrow morning). There is also the Roy Castle Lung Foundation, which offers specialist info. I have been given so much specialist nurse advice and up-to-date info on protocols, which unfortunately seem to keep changing. It will help you pull together all the points you need to make and also flag up who best to approach in first instance. PALs are great for telling you how to complain, so Carol is correct to point you there. BritishLungFoundation (or whatever it is now) should be able to help with regard to what procedures are/aren't being done currently. Some stopped completely during the pandemic. It really was a horrible time for anyone with lung issues. Still is with another Covid wave taking over, I guess. I'd be really interested to know how you get on if you do call a specialist lung helpline and what they have to say about this. It will help others going through what you are going through now. I wish you luck and hope things speed up for you soon. xx