Deciding whether or not to have chemotherapy

Hi I've recently had my oncotype DX report and my score is 24. I'm 44 years old and premenopausal, after a discussion with my oncologist I feel I've come away none the wiser???? 

I had a lumpectomy and was told I had micrometastases, where the closest lymph node was just showing signs of cancer.

Initially I was adamant that if chemotherapy was my choice I wasn't going to have it, however I now kind of wish it wasn't. I'm really struggling to make a choice and don't feel like I've been given a good case either way, I don't understand how I'm supposed to make that choice if my oncologist can't.

Please help 

MJ

 

Parents
  •  

    Hi MJ,

    This is always a difficult decision to make, especially when you feel that you don't have all of the answers you need to decide. You might find it helpful to draw up two different lists - the first with all the questions you need to ask your consultant, in order to reach the right decision - the second a sheet of paper with 2 columns, one for and one against chemo.  

    If there is anything that you are unsure about, don't hesitate to ask your consultant or your nurse. Ask them what they woulld suggest if you were their partner. This is very much an individual decision at the end of the day and one that only you can make. However, you need enough information to be able to reach the right decision for you.

    If you were to ask people who have faced this situation themselves, you would probably find that you get a mixed reply. Every cancer is individual to the person that has it. It relies on so many other factors too - age, general health, genetics, hormones, lifestyle, etc all play their part. 

    The people who know most of these facts are in your care team, so they should be best placed to help you. Whatever you do eventually decide, I hope that it is the best possible decision for you.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

     

Reply
  •  

    Hi MJ,

    This is always a difficult decision to make, especially when you feel that you don't have all of the answers you need to decide. You might find it helpful to draw up two different lists - the first with all the questions you need to ask your consultant, in order to reach the right decision - the second a sheet of paper with 2 columns, one for and one against chemo.  

    If there is anything that you are unsure about, don't hesitate to ask your consultant or your nurse. Ask them what they woulld suggest if you were their partner. This is very much an individual decision at the end of the day and one that only you can make. However, you need enough information to be able to reach the right decision for you.

    If you were to ask people who have faced this situation themselves, you would probably find that you get a mixed reply. Every cancer is individual to the person that has it. It relies on so many other factors too - age, general health, genetics, hormones, lifestyle, etc all play their part. 

    The people who know most of these facts are in your care team, so they should be best placed to help you. Whatever you do eventually decide, I hope that it is the best possible decision for you.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

     

Children
  • Hi Jolamine thank you so much for your reply and support. I hope you are well yourself. In just 4 days I've talked myself in and out of chemotherapy more times than I care to think about.

    I had a call today from one of the specialists nurses at the hospital, as well as sharing my worries with her I told her my sensible head thinks I should do everything I possibly can now; while I'm young enough and generally healthy to give me the best possible outcome longterm, she said she agrees with my sensible head and I think that's what I needed to hear to reassure myself that it was the right choice, she was incredibly supportive and I actually found it easier to talk to her than my oncologist; who remained entirely on the fence throughout my appointment with her.

    So chemotherapy it is !! 

    Thanks again MJ

  • What frightens you personally about chemo? You will read horror stories but I've had 8 cycles with very few side effects. Never felt sick and  carried on with my normal life. Doctors today are very good at managing any side effects you may have. 

  •  

    Hi MJ,

    I am so glad that you have managed to get a chat with one of your specialist nurses today and to hear that she was so supportive. I found my nurses very supportive second time around - the ones I had when I had my first bout 12 years ago, were not so helpful. Likeyou, I got a lot more help and information from them than I did from my consultant and oncologists.

    When you already have some signs of cancer in your sentinel lymph node, chemo is possibly the best route to take. Otherwise, you would always regret not having had it if it spread further. You will probably change your mind a few more times before you get it, but it sounds as if your sensible head is winning.

    Have you got a date for chemo yet? Please keep in touch and let us know how you get on. Remember that we are always here for you.

    Kind regards,

    Jolamine xx

  • Hi snowdrop.. 

    Hope you don't mind me jumping on, I'm 38 and my cancer has just changed to grade 3 after surgery mine went for oncotype testing and has come back at 18 my bcn has told me to prepare for chemo as it is higher then they would like for my age (cut off being 16) 

    Did you have the onco scoring atall? I had no lymph node involment and clear margins Her2- and Er+ Pr+ 

    Thanks S x