How long?

My husband was diagnosed with metastatic lung cancer two years ago. He's been having chemo and also had 3 sessions of gamma knife. The latest scans have shown the cancer is growing and spreading to his brain again, his adrenal gland, lymph nodes and his brain again. The tumor on his adrenal gland is quite large. His feet and ankles are massively swollen and uncomfortable. Chemo has now been stopped as it's no longer working and he is too unwell to continue. No other treatment is an option due to him being unwell.

I know no one can say for definite but I want to know what's going to happen and how long he'll have. I need to prepare myself as best I can.

Parents
  • Hello Ashy1 and thanks for your post

    I'm not sure if your husband has a lung clinical nurse specialist (CNS) but if so, they or the GP are a good starting point to discuss him being referred to the palliative care team or to a Macmillan nurse who can ensure things are in place as and when they might be needed.

    We have some more information about end of life care and support in our dying with cancer section of our website here. When patients reach this point of their disease a discussion usually happens between the nurse and the patient to discuss their wishes about how and where they would like to spend the last weeks or days of their life, whether this be at home or in a hospice. From this discussion the most appropriate referrals can be made to community services and health care services needed for the patient (such as a GP/district nurses/ hospice/occupational therapist/social services and so on).

    Palliative (end of life) care is about keeping the patient as comfortable and as symptom free as possible to ensure the best quality of life until the end comes. This phase can be quite short but for others can go on for several weeks or even longer in some cases. The specialist team involved in your husband's care will be in a better position to discuss what the prognosis ( how long he may have) with you both to help prepare for what might come.

    I hope this is of some use. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

Reply
  • Hello Ashy1 and thanks for your post

    I'm not sure if your husband has a lung clinical nurse specialist (CNS) but if so, they or the GP are a good starting point to discuss him being referred to the palliative care team or to a Macmillan nurse who can ensure things are in place as and when they might be needed.

    We have some more information about end of life care and support in our dying with cancer section of our website here. When patients reach this point of their disease a discussion usually happens between the nurse and the patient to discuss their wishes about how and where they would like to spend the last weeks or days of their life, whether this be at home or in a hospice. From this discussion the most appropriate referrals can be made to community services and health care services needed for the patient (such as a GP/district nurses/ hospice/occupational therapist/social services and so on).

    Palliative (end of life) care is about keeping the patient as comfortable and as symptom free as possible to ensure the best quality of life until the end comes. This phase can be quite short but for others can go on for several weeks or even longer in some cases. The specialist team involved in your husband's care will be in a better position to discuss what the prognosis ( how long he may have) with you both to help prepare for what might come.

    I hope this is of some use. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

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