Hi,

I am in the same boat. I was diagnosed on the 25th. I'm waiting for an MRI and lymph node biopsy on the 2 feb. I wish I could turn my brain off. I'm petrified it's spread. Every ache I think is cancer. The waiting is unbearable. I'm sending you a big hug as we start this awful journey. Here's to getting to the other side. 

Hi,

I am in the same boat. I was diagnosed on the 25th. I'm waiting for an MRI and lymph node biopsy on the 2 feb. I wish I could turn my brain off. I'm petrified it's spread. Every ache I think is cancer. The waiting is unbearable. I'm sending you a big hug as we start this awful journey. Here's to getting to the other side. 

Hi Agapanthus,

I hear you. I've started to get twinges in the "affected area" although the MRI results will say exactly how far this extends. Of course this could well be psychosomatic but it's quite unnerving. I'm suddenly feeling a lot more optimistic and able to cope but hope that that's not only because of the stress relieving medication I got from the GP (!). It has helped to talk to some lovely people on this forum. I'm just grateful for this window of relief but do actually think (hope) it might be a genuine shift in coming to terms with it. I get the MRI results and treatment plan in just over a week.

C.

Hi ClaireBee - I'm sorry you've had to join us on here. In case it helps, here is my story... I was diagnosed in August and then had two months (10 weeks) of scans and tests and consultations and waiting before surgery. I worried so much in the first three weeks that it had spread/ was spreading that I ended up with stress-induced backache (which of course I decided was the cancer spreading) bad enough to need prescription pain relief... of course it wasn't the cancer - it was all the anxiety. In hindsight I can see why all those tests were essential. The medical teams really are busy behind the scenes getting you to the point of treatment as fast as possible.... in the end I kept telling myself that they absolutely wanted me to beat this... quite apart from the altruistic/ compassionate motivation, logically, we only get more difficult, complicated and expensive as patients if it spreads, so even if they weren't the compassionate and caring souls that they are, the consultants and surgeons and nurses are still going to be doing everything they can to stop that spread from happening.

Thank you. Yes, I can absolutely see your logic.

I'm so appreciative of all the support on this forum. It really is making me feel better.

Thank you so much.

C.

Hi Agapanthus,

Welcome to our forum. I am so sorry to hear that you find yourself in this unenviable situation too. It is only natural to feel as you do. I am glad to see that you don't have long to wait before you have your MRI and lymph node biopsy. Unfortunately, you will then have another wait before you get your results. Make sure to as when you are likely to get your results before you leave the hospital. It's always a little easier if  you know when to expect them.

Do you know what type of breast cancer you have? Things will move pretty quickly once your MRI results come back, so there is little likelihood of spread in that time.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi Jolamine,

I have invasive ductal carcinoma. It's 8mm although I have dense breast tissue so the MRI will check I only have the one as lots of cysts too. I've gone from knowing nothing about breast cancer to this in 5 days!! 
I'm finding posting and reading posts on here really is helping as I don't feel so alone and out of my depth. I be back to let you know my next steps when we have the full picture of what I have been dealt.

have a lovely weekend 
 

claire xx

Hi Agapanthus,

I am sorry to her about your diagnosis. It's amazing just how much wecan learn in a short time. Just be careful to stick to the well-respected sites, as there is a lot of inaccurate, out of date, poorlysearched information out there, which is aimed at the more spectacular cases. Some of these will scare the pants off of you and serve no useful purpose.

I'm glad to hear that you are getting some help from participating in the forum. Unfounately, you are certainly not alone in your journey and, we are always here for you.

Kind regards,

Jolamine xx

Thank you jolamine xxx

Results of MRI yesterday. It's 2.7cm. Having surgery in 2 weeks with skin flap from under arm/back followed by radiotherapy. Was fine about it all until nurse let slip that it's the less responsive to chemo type and that it's more likely to have gone to lymph nodes because of the position. So now I'm back to being terrified again. I also get a bit freaked out by the sympathy from the professionals and wonder if there's anything else they're not telling me. What a mess. I don't know how I'm going to get through this.

Hi there

I am sorry to hear you are having surgery in a couple of weeks time. It is very natural to be feeling worried and nervous about what will happen next but try and take it one day at a time.

I hope you have family and friends to support you through this time. Do let them help you out in any way you feel you need as and when as I am sure they will want to be there for you, if they can.

The doctors and nurses involved in your care will be telling you everything they know so please don't feel you are being kept in the dark and ask them anything you want to as well.

Keep chatting away on here to all these lovely people who have been or are going through something similar as well.

Please do ask us nurses any questions as well and you are always welcome to call the nurses on 0808 800 4040, Mon-Fri 9-5 if need be.

All the best

Naomi

Hi Claire Bee,

I agree with our nurse Naomi. Your care team will be telling you everything that they know. They don't hold anything back. I am sure that you feel nervous about surgery at the moment. I found the thought of surgery very daunting. Since then I have survived a lumpectomy followed by Tamoxifen for a year, then a double mastectomy the following year, followed by Letrozole for 6½ years. That was all 12 years ago and, I am still living a busy and fulfilling life.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx