Hey!
Im 28, Wales, 2 young boys, 9 and 6.
Not sure if i should be part of this webchat.. as i am an unanswered case, still, but the C word has been mentioned and im so in limbo and struggling i needed somewhere to come and talk!
I had an exteemely rare Tumour found in my thecal Sac below my spine in october. 4 MRI later, also an abnormality in my cord instelf and "dots" on my brain. My CSF fluid was bright yellow in a previous LP, bloods are perfect though. No infection or Virus present. All unusual and not making any sense.
Wich makes my journey quite unbearable as i am still with no answers.
29th November, most of my tumour was removed, leaving a small amount in wich is tangled in and around important nerves. Therefore, leaving me in excruciating pain just as before op.
Mentally im struggling with no answers.
I was due an op in Cardiff and 3 days before my spinal monitor gentlemen, had a heart attack therefore i had to be moved to Bristol as nobody else in Wales could do his job. Couldnt write it.
Sorry for long post. But as you can see. Its all just an unlucky situation ive found myself to be amongst.
