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susan56

susan56

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About susan56

Hello, This is the first time i have joined any forum and my grammar is not is not the best but please excuse this. My story starts about 5 years ago , I have COPD and ASTHMA but started to feel really unwell breathless and generally ill visits to my GP just resulted in antibiotics and steroids but i did not get better , My Husband on occasions called an ambulance as i felt like i had stopped breathing whilst asleep and jolted up struggling to breath again i was treated for the copd they did do a heart trace i think its called and put on an nebuliser which i have at home i knew this was not the problem by nobody would listen to me . This went on for about 2 years i was at my wits end knowing something was wrong but not what it was until one day a different GP listened to my heart and said "Susan you have heart failure " so then things started to happen hospital scans ,tests ect and they found i had 3 leaking valves and 2 blocked arteries but also looking at the x ray they saw something and told me i had lung cancer , My husband and i left the hospital in bit's hearing that part. I needed heart surgery urgently but further tests had to be done to find what cancer it was so i had more tests and tubes down my throat to take samples but they could not find cancer, eventually they found it was a very rare infection that affects 1 in 300,000 i was admited to hospital and put on iv antibiotics , I could not have the heart surgery due to the risk of cross contamination it took 9 months before i was given the all clear so that op went ahead and i had a plastic ring inserted to replace one valve and 2 were repaired also the 2 arteries were bypassed with veins from my leg, February this year a routine x ray showed something so a PET scan was done and this time it was lung cancer stage one , i was operated on in April which is one year 9 months since my heart op. i couldn't have the chemo that was to follow as i was to poorly but they said they got all the cancer out. sorry for such a long post but if i am to get the support i so want i needed to tell you the full story. you are all so brave on here i do not know how you cope with it all. god bless my prayers are with you all x

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