Hi I am new to forums! Having read all the messages I feel so sorry that these people are living such a difficult time with MF. My heart goes out to you all.
I will write more later but this is just my introduction.
5 years ago i was diagnosed with follicular-non hodgkins disease (cancer of the immune system) which can get aggressive overnight. 2 years ago I was diagnosed with MF which is slowly spreading but not to tumour stage yet but also lowers immune system, Oct 5th 2021 had mastecotomy of left breast - Invasive ductal BC. Worst of all last year 2021 I found my partner of 16 years dead in bed from an unexpected heart attack 4 weeks later I was in hospital for 10 days with pneumonia/Asthma. I was a Carer for 20 years (no emotional/physical/ or financial support.) Now I have no family and friends far away but I have kept up my spirits and the only message of help I can give others, in this case with MF - keep busy - remember non of us get off this spinning globe alive, so although fatigued/pain etc when feeling easier - walk in the fresh air, see the nature - it really does help and gives you a natural 'high' with seratoinin. Genuine concern for all these people with this rare disease. Keep strong... easier said than done.... but if you can manage this you will get the best benefit from life than wasting every precious moment that you may go in and out with. Blessings
