Update
Docetaxal worked tumour markers from 223- to 17!!
Will continue with Phesgo injections every 21 days for life (or as long as they work) but been told there’s lots of other treatment options if they stop.
Update
We’ll I had a PET scan as 1/10/21 with chemo planned after. Also had heart scan but then they couldn’t do chemo as injections in both arms!!! Heat scan team in trouble as asked about chemo. Anyway it’s now scheduled for 4/10/21
Had oncology who said bad news…. PET scan showed extensive mets in all bones. Couldn’t believe it as bone scan clear 26/9/21
Treatment changed to Docetaxal x6
Update:
26/9/21
Well here we go… aggressive lobular..
have treatment plan guide as oncologist said see how I respond. First round EC chemo, 4 lots starts in two days. It’s HER+ ER+
17/09/21
It is!
Breast is huge now.
Going for more tests
Waiting for oncology appointment but it’s chemo first..
August’21
Found a lump 2 weeks ago and have clinic appointment next week 6/9/21
It was walnut size and now it’s like a huge lemon and becoming uncomfortable. It’s so hard and the skin is pitted and thick like orange peel! I can feel another now on the side by armpit.
Mum had breast cancer. All her 5 siblings died of a form of cancer, so you can see why I’m worried.