Firstly I'd like to thank the staff at Countess of Chester, Clatterbridge and The Christie hospitals for their efficiency in dealing with my problem.
I'm useless at expressing myself so excuse the ramble as I'm not used to doing this. In 2009 I was diagnosed with Lichensclerosus and as a result was advised to have a circumcision which I did in Dec 2009. This uncovered 2 areas of concern and at a check up in 2010 I was told that they would keep an eye on things beacause it may turn malignant. For the next 4 years I was having check ups every 6 months, a biopsy roughly once a year and several treatments. I knew deep down that this 'may turn malignant' warning was going to happen sooner rather than later and was worried about it to the point it destroyed my relationship, I didn't want to pile a 'ticking timebomb' onto my girlfriend at the time. She was wonderful but I just kept dragging my feet with things hoping the next appointment would sort it once and for all. The specialist was trying different treatments, testing me for various STIs (which I knew there was no way it could be one of those) until late 2013 when I had just about reached the end of my tether. The specialist did yet another biopsy (4th one in a year!) and sent it to a team of urologists who were specialists in that type of problem. I knew what the diagnosis was going be when I got an appointment letter from Clatterbridge hospital for May 2014, I felt relieved in a way because I thought at least now they can treat it and do SOMETHING, the pain over the last few months had got worse and I would have at least 2 or 3 nights a week with no sleep because of it. I had been a mental wreck since my relationship ended because of this. Even though it was a relief in a way, the diagnosis still knocked me for six I remember driving back to work and parking in the services opposite and ringing people to cancel my appointments etc for the following week because of my op, that was absolute hell.
I had a glansectomy in May 2014, less than a week after being told which was good, I thought, not waiting around too long. This went successfully and even though things look a little different now, it's nowhere near as embarassing as it was before, I have used public showers at swimming pools etc since withut worrying about being 'different' which I could never have done before.
They did a sentinel node biopsy in Sept 2014 which came back negative and I'm having 3 monthly check ups with the specialist who did the glansectomy. Physically, things seem to be looking good even though I'm aware I'm not out of the woods yet but mentally this has destroyed me. Things went downhill not long after the circumcision when the various treatments they were trying didn't work, I just knew what was going to happen and was correct - it did. I just want to know how to put things back to how they were before all of this started, I don't know how much more of this I can take.
Sorry for rambling
