Hi I was diagnosed with Et CALR I last October. I’m one low dose chemo for life. I had low iron for 4 years. But after a full blood count in August they found out my platelets were high. Fatigue is a symptom. I also get headaches. Bone ache. My iron improved. But chemo makes me have stomach cramps and stomach bug. So some days fatigue is worse. I live with my daughter she’s also on strong medication for paranio and skitzophrenia. We both try to support each other. I don’t have a carer. So some days harder than others.
