Thank you for doing this study Mino. I recently lost my partner to metastatic lung cancer, so don't think I meet your criteria. But I wanted to share some experiences, which I'm not sure if are helpful. Even though he had stage 4 lung cancer he did well for a long time with it. We were able to live relatively normal lives at the beginning and adapted to our new routine. I definitely noticed that when his walking got worse, so did everything else. I definitely noticed a shift in his mood and things like his pain and fatigue got worse. It also impacted on me too as I was his main caregiver. Our children are grown up and live far away but they tried to come down and help when they could. I did have a carer come twice a day but the rest of the time it was just me. When his walking got worse it meant that he became more reliant on me to help with his everyday activities. he had always been so active all his life and i think him struggling to walk was one of the worst parts of his cancer as he lost his freedom x

Hi Jottie,

Firstly, I am really sorry to hear about the recent loss of your partner. I also want to thank you for taking the time to share your extremely valuable experiences and insights. You are correct, and unfortunately are not eligible for this study. However, there are opportunities to be involved as a 'patient, public, involvement' (PPI) member. For example, as part of the study design process, we've liaised with PPI members who helped us develop the questions that should be asked within the interviews. If this is something you might be interested in, please do send me an email (above) or add me as a friend and I can send you further details via a direct message.

Thank you again and wishing you all the best.

Mino

Thank you Mino for your kind words. i am interested in the other oppotunities to get involved so please send the details over when you can. I forgot to mention in my last post i dont have twitter so can you send me the psoter for your study?, So i can bring it to the cancer support group i still go to if that is helpful x

Afternoon Jottie,

Thank you for your message and great to hear that you're interested in PPI opportunities. I have sent you a friend request. If it is easier, feel free to reach out via my university account: carmine.1.petrasso@kcl.ac.uk

Thank you so much for offering to share the flyer with your cancer support group, that would be fantastic! I can send you across a copy once I have your details.

Best wishes,

Mino