Hi all
(Sorry this is going to be long! TL;DR at bottom)
I was here last year with a lump in my breast that turned out to be benign (whew), but am now back again this year with bizarro symptoms since August. I'm sure so many of you can relate to the frustrations of back and forth to the GP, trying to get a diagnosis, and despite being sympathetic to the constant mantra of "well the NHS are under unprecendented levels of pressure", it is nonetheless an uphill battle mentally.
Basically, the docs can't diagnose me at all. I had suspected food poisoning one night in August that (sorry!) resulted in a violent vomiting session. Normally, when I've been sick before soon after eating gone-off food, I feel instantly better. Not so this time. I noticed that afterwards, my stomach hurt like hell for a couple of days afterward, before easing. Then, I started with a sharp pain in my right side one Friday evening that just kept on stabbing and then radiating into my back. I've had UTIs before and thought "Aha! I know what this little wotsit is...I will get to the walk in centre tomorrow." The walk in centre were entirely unsympathetic and just told me I needed to take painkillers. They did a dip test which came back negative (and I've since learned that dip tests in general aren't very accurate anyway so... yeah.)
The pain got so bad, that by the Sunday afternoon, I went to A&E. It was excruciating around my side and abdomen and had developed into feeling like someone was shoving a hot poker up my spine. At this point I didn't know what I had, but it HURT. A&E were lovely. Many hours, blood tests, 1 scan and samples later (and the joys of carrying a plastic kidney dish of my own pee through the corridors was not a favourite Sunday afternoon memory!). they found protein in my urine and "traces" of blood. I was given antibiotics and told to go home.
Interestingly, my GP then rang my the next day, to tell me that I needed to switch antibiotics, as the ones that A&E had given me wouldn't be effective against e coli. Joy. Ok, fine.
Fast forward (because let's face it, yacking away about my pee isn't a thrill anyone wants more of), I've had 4 courses of antibiotics now - 3 loads of nitrofuratoin, 1 course of cefalexin and am currently in the middle of a 2 week course of more nitrofuratoin. The first course actuallly seemed to be the most effective. My pain vanished entirely for a few days, only to come back as soon as I completed the course. The second course did the same thing. And the third and fourth did nothing at all for the pain. Despite this, my tests keep coming back either negative or borderline - that's when the surgey don't literally forget to send or lose the pots!
The pain continues and has ended up, at different times, radiating into my left shoulder, lower back, left abdomen, but the concentrated pain is always upper right abdomen. Since mid Sept, I have been experiencing horrible inflammation around my ribs. When I lie on my side, it feels like there is a brick between my skin and ribs. The back pain continues (best way I can describe is if you drew a T shape across my shoulder blades and down my upper back). Sometimes it's sharp, sometimes it's dull and achey or weirdly pulsating.
I've now had a full ultrasound of my abdoment and they could find nothing. Gallbladder fine. Pancreas fine. Kidneys fine. (lol really?!) Appendix fine. Also had internals. Cervix fine. The ONLY thing they can fine for sure is PCOS and a little fat on my liver. PCOS I've known about for decades and the liver... well, no one seems concerned other than "eat more greens please".
Kidney stones has been floated as an idea by two GPs, one of whom put me on tamsulosin, to no result.
I actually ended up BACK in A&E for a second time, when the pain was again, excruiating, no painkillers would touch it, and the inflammation around my ribs was so painful that I literally couldn't get dressed without wincing in pain as my clothes brushed my skin! Again, they couldn't find anything wrong, despite more bloods and a chest x-ray. They gave me some codeine and sent me home.
It has been a FIGHT to get this CT scan though. It was originally scheduled for Feb 2022 back in September. It's only after paying through the nose to see a urology specialist that it has been bumped to tomorrow. I just want answers now. Of course I hope it's not bad news. I have seen SO many GPs now, all with different theories but never anything concrete. One GP determinedly told me "you don't have cancer. Trust me." and yet..... I didn't think they were supposed to make such promises?! Hope he's right of course, but... y'know.
I am just sick and tired of being in daily pain that keeps changing and moving and generally making my life miserable. I've had to take time off work because of it and it's certainly stopped me in my tracks from doing anything more than getting through one day to the next. I am just so scared that this delay in diagnosing anything may have made everything so much worse - whatever it is.
But I guess we shall see what happens after tomorrow....
TL;DR: Abdominal pain radiating into back since August. Inflammation around ribs. Scans clear. Tests borderline negative. Loads of antibiotics with varying results. Very frustrating. CT scan tomorrow.