Abdominal pain and lump

Hi all

(Sorry this is going to be long!  TL;DR at bottom)

I was here last year with a lump in my breast that turned out to be benign (whew), but am now back again this year with bizarro symptoms since August.  I'm sure so many of you can relate to the frustrations of back and forth to the GP, trying to get a diagnosis, and despite being sympathetic to the constant mantra of "well the NHS are under unprecendented levels of pressure", it is nonetheless an uphill battle mentally.

Basically, the docs can't diagnose me at all.   I had suspected food poisoning one night in August that (sorry!) resulted in a violent vomiting session.  Normally, when I've been sick before soon after eating gone-off food, I feel instantly better.  Not so this time.  I noticed that afterwards, my stomach hurt like hell for a couple of days afterward, before easing.  Then, I started with a sharp pain in my right side one Friday evening that just kept on stabbing and then radiating into my back.  I've had UTIs before and thought "Aha! I know what this little wotsit is...I will get to the walk in centre tomorrow."  The walk in centre were entirely unsympathetic and just told me I needed to take painkillers.  They did a dip test which came back negative (and I've since learned that dip tests in general aren't very accurate anyway so... yeah.)

The pain got so bad, that by the Sunday afternoon, I went to A&E.  It was excruciating around my side and abdomen and had developed into feeling like someone was shoving a hot poker up my spine. At this point I didn't know what I had, but it HURT.  A&E were lovely.  Many hours, blood tests, 1 scan and samples later (and the joys of carrying a plastic kidney dish of my own pee through the corridors was not a favourite Sunday afternoon memory!). they found protein in my urine and "traces" of blood.  I was given antibiotics and told to go home.

Interestingly, my GP then rang my the next day, to tell me that I needed to switch antibiotics, as the ones that A&E had given me wouldn't be effective against e coli.  Joy.  Ok, fine.  

Fast forward (because let's face it, yacking away about my pee isn't a thrill anyone wants more of), I've had 4 courses of antibiotics now - 3 loads of nitrofuratoin, 1 course of cefalexin and am currently in the middle of a 2 week course of more nitrofuratoin.  The first course actuallly seemed to be the most effective.  My pain vanished entirely for a few days, only to come back as soon as I completed the course.  The second course did the same thing.  And the third and fourth did nothing at all for the pain.  Despite this, my tests keep coming back either negative or borderline - that's when the surgey don't literally forget to send or lose the pots! 

The pain continues and has ended up, at different times, radiating into my left shoulder, lower back, left abdomen, but the concentrated pain is always upper right abdomen.  Since mid Sept, I have been experiencing horrible inflammation around my ribs.  When I lie on my side, it feels like there is a brick between my skin and ribs.  The back pain continues (best way I can describe is if you drew a T shape across my shoulder blades and down my upper back).  Sometimes it's sharp, sometimes it's dull and achey or weirdly pulsating.

I've now had a full ultrasound of my abdoment and they could find nothing.  Gallbladder fine.  Pancreas fine.  Kidneys fine. (lol really?!) Appendix fine.  Also had internals. Cervix fine. The ONLY thing they can fine for sure is PCOS and a little fat on my liver.  PCOS I've known about for decades and the liver... well, no one seems concerned other than "eat more greens please". 

Kidney stones has been floated as an idea by two GPs, one of whom put me on tamsulosin, to no result.

I actually ended up BACK in A&E for a second time, when the pain was again, excruiating, no painkillers would touch it, and the inflammation around my ribs was so painful that I literally couldn't get dressed without wincing in pain as my clothes brushed my skin!  Again, they couldn't find anything wrong, despite more bloods and a chest x-ray.  They gave me some codeine and sent me home.

It has been a FIGHT to get this CT scan though.  It was originally scheduled for Feb 2022 back in September.  It's only after paying through the nose to see a urology specialist that it has been bumped to tomorrow.  I just want answers now.  Of course I hope it's not bad news.  I have seen SO many GPs now, all with different theories but never anything concrete.  One GP determinedly told me "you don't have cancer.  Trust me." and yet..... I didn't think they were supposed to make such promises?!  Hope he's right of course, but... y'know. 

I am just sick and tired of being in daily pain that keeps changing and moving and generally making my life miserable.  I've had to take time off work because of it and it's certainly stopped me in my tracks from doing anything more than getting through one day to the next.  I am just so scared that this delay in diagnosing anything may have made everything so much worse - whatever it is.  

But I guess we shall see what happens after tomorrow....

TL;DR:  Abdominal pain radiating into back since August. Inflammation around ribs. Scans clear. Tests borderline negative. Loads of antibiotics with varying results.  Very frustrating.  CT scan tomorrow. 

  • 3 things I've known close relatives suffer similar pain are costochronditis - inflammation of cartilage, kidney stones and gallbladder where it wasn't stones as such but sludge! Hope you get answers soon. Myself - I suffered with agonising upper abdominal pain for months. It was all linked to stress and muscle tension x

  • Thank you for replying!   Costochrondritis has been mentioned by one GP and they certainly seem sure that the rib inflammation is related.  Sorry to hear about your pain too!   It's so frustrating sometimes isn't it?  Sometimes like chicken and egg where the great unknown ends up making everything worse because it causes stress and tension. 

    Some good news - the CT scan was clear, and all the bloods and other tests are clear again.  I'm due to see my GP again at the end of next week, but it seems so far away.  I also finally located the REALLY painful lump in my right abdomen, just below my ribs.  It feels like a solid marble, and I literally yelped when I pressed it.  

    To add more happiness on top, I freaked out when I found unusual changes to my breast this morning.  Purple nipple, scaly patch and white bumps.  100% not normal for my boobs!  So.... back to the GP we go.  I really, really do try and not be a hypochrondriac but after 4 months of the above pain, and knowing we just don't mess around when it comes to breast changes, well, yes here we are.

  • Just an update on the above.  Pain still around and acute in my right abdomen and since has been more painful on the left too.  I now have two lumps on my back, below my ribs, which GP is sure are cysts/benign muscle inflammation, as well as the painful knots in my right abdomen. 

    Also have had sharp pains in my ovaries and burning "down below" - though all external, nothing when I actually pee.  There was blood in my urine, but GP wasn't concerned and no UTI showed up.  Potentially related to incident the other week when I overstepped some furniture and wrenched my lower abdomen and groin.  Burning has since mostly gone, only with occasional twinges and no blood now for about 4 days. 

    Breast exam given the all clear - no further tests required - GP certain it's just a bit of contact dermatitis.  

    But yes, the general flank/back pain is driving me crazy.  I can barely go for walks now without having sharp pains that make me stop and clutch my side or back.  I know this isn't normal but all my scans thus far have been clean as a whistle so.............  GP also said that because the pain moves around and is across my torso, as unpleasant as it is to be dealing with, in theory that means it's less likely to be cancer, than if it was solely in one spot all the time?

    Have also recently seen an acupuncturist who didn't seem concerned by the lumps, but was sympathetic.  She said it could be some autoimmune reaction, potentially to the Pfizer jab, which freaked me right out, as the pain only started after I'd had the jab.  But then I had zero reaction to the first, and no reaction to the booster eiither, so who knows.  All I know is that I want to find out what the hell is going on with me and treat it properly!

     

  • Just an update.  Still no diagnosis.  Still terrified.  

    The abdominal lump and pain seems to have migrated to the left side now, although I still get twinges in the right.  It kicked off good and proper again, just over a month ago.  I can't get anyone to take it seriously.  GP is adamant that there's nothing there, and that they don't need to repeat the scans that they did last Septermber! 

    Literally, as I sat down to write this, I felt a twinge in the exact same spot in my lower left abdomen that's been there for months.   It TECHNICALLY is better than it was.  Only stabs me a few times a day now, as opposed to all the time a month ago. 

    I did get sent for a supposed abdominal scan, but turns out they booked me for the wrong thing and sent me to gyno, who refused to scan me (I'd already had a routine gyno scan that same month!)    They told me to go up to A&E, as I was in agony at the time.  A&E left me sitting there for 6 hours, then told me to go home, as no one was available to scan me. 

    So I'm sitting here, weeks later, terrified of this stabby lump thing in my abdomen, that wakes  me up during the night to stab me, and that no one seems to be in any kind of a rush to figure out.  

    Oh, and all the flank, waist, back and rib pains/tension are worse than ever.  

    My life is a living HELL at the moment.  I can't see anyone who will take this lump and pain seriously.  GP tells me to go to gyno.  Gyno won't see me, until a routine "chat" at the end of the month.  They won't even check my recent scans to put my mind at rest about my ovaries.  

    Rectal won't see me, except for a telephone triage that I'm still waiting for, 6 weeks after A&E told them it was an urgent referral.  (I have another rectal issue, but there is suspicion that the lump and the pain may also be bowel related.... but really, no one knows! )  However, how can they possibly make any kind of conclusion from a freaking telephone triage call, especially when A&E have already examined me and deemed it "urgent"???

     

    I am SO scared.  ALL the time.  I feel like a rag doll being passed around ineffectual departments, fobbed off and even on one occasion, sent home from the hospital, literally in tears and still bleeding everywhere, because no one believed me when I said I was bleeding from EVERYWHERE down below.  Believe me.  I know my anatomy, thank you.  My pee should not have been bright pink. 

    But no one will see me.  Not properly.  I've been refused abdominal scans because "there's no point".  And I'm now having nightmares every night and even have begun drafting a will, because, frankly, 10 months in, with everything so much worse than ever, with no diagnosis in sight, I am just terrified.