Bobcat

Hi Bibcat I've just read your post about the CA125 Blood test, I've just had one on wed  17th November, along with liver profile,bone profile  and full blood count.

I was diognosed with brest cancer in May 2020,had lumpectomy, all lymph nodes removed from under my right arm, had chemotherapy, Radiotherapy  which all ended in March 2021. Before this ,the year before I had a growth down below on my vulva, I saw a gp who made me feel.vety uncomfortable, he kept  saying " Do you really want me to look at it," I said " no because I'm embarrassed, but yes because I'm worrird as to what it is " .he called  a lady chaperone In  to the room,gave it a very quick look and said " its a skin tag, dont worry about it ". I wasn't really happy,as it didn't look like a skin tag to me. Anyway during my chemotherapy sessions it started to bleed a bit,I told my chemotherapy nurses   and they didn't seem to worry about it either. Anyway a year on ,recently I experienced  some more bleeding not much but enough to be concerned about it, so i went and I saw another gp  at my doctors, as it looked white In .Places, she said " I'm not sure what it is,but has refferd me to a 2ww referal to a gynecologist, and sent me for the blood tests that I've mentioned above. .

I'm so worried as I googled the CA125 bloid test and found it to be checking for ovarian cancer.  I've since developed chronic tooth ache,as I've recently had my 65th birthday, and bit into a piece of birthday cake  which caused extreme pain in a tooth that is nearly all filling. I cant get into the dentist till 22nd November, my tooth pain is getting worse and causing my jaw to hurt to so ive been taking ibrobufen, and now taking  oral morphine  as well, and im worried that in itself may raise my blood levels. I'm just praying I haven't got cancer somewhere else again,I'm so glad you had good results,hope I do too. But your post has helped  as if I do have raised blood levels it could be due to my tooth pain,as I may have an infection there I am not sure, what's causing my tooth and jaw pain  but I do have IBS as well  which you have also mentionedcan raise the bloodlevels .So thank you for your informative post. 

Yoh are welcome, I've been on the brink of a breakdown over this.. I think ca125 is associated with ovarian cancer but I've spoken to a consultant gyne today who basically said it can be anything at all.. there are no screening tests for ovarian cancer for a reason.. there isn't any test accurate enough so why on earth do they focus on ovarian cancer when it's raised, I've had 2 weeks of hell and some very invasive procedures, which , as it turns out, we're for nothing.. I would do it all again for peace of mind but in hindsight it was unnecessary .. please anyone , like me who has been ill with worry, don't until yoh have facts!!

Thanks for this, so glad everything is okay. Can I ask why did you have a C125 test initially? I have just had one come back as raised, not sure of the number, been referred for CT scan on 2 week pathway. I'm petrified! 

Back in April I had some bloating which I knew was Ibs and a bit of irregular bleeding, my dad had just died and I knew it was stress, the doctor did the test , it was 46 but I never followed it up.. I asked for the test a couple of weeks ago as it was playing on my mind, had no symptoms at all x

Thank you so much for this. My CA125 is 51 and ive been worried sick . Im having an ultrasound next week and past myself waiting

Hi Hender. I am just piping up to let you know that you are not alone. My ca125 is 56, and my scan is in 2 days (I've waited since Xmas for it!) 

can I ask what symptoms you have? 

Hi so good to hear from someone in the same situation (even though its not a good situation)

my symptons are severe pain and this month i have bled for 13 days - seen a different doctor to my usual one and she was great - sent me for bloods and tested for CA125 - ive never even heard of it before!!! Thank the Lord she did - im praying its something else and not ovarian cancer. What are your symptoms?x

Hey! We sound quite similar! I haven't experienced any pain, but I had a 2 week bleed too! It started as light, watery pink bleeding for 5 days, then 4 days of what I believe was my normal period, then a few days of spotting, and ended with 3 days of heavy brown discharge. So I don't know if this was a super long period, or if I had abnormal bleeding which just so happened to occur either side of my period ‍♀️
I've also had some light spotting after sex for a few months too. 
 

How are you feeling?

Im feeling ok just worried but trying to stay positive - im not in pain anymore but there is definitley something not right. My period started off brown blood for about 4 days then 8 days of red blood then brown again. The pain was like nothing ive had before and im quite used to painful periods . Just want to know what it is - u have waited longer than me for your scan so goodness knows how u have felt. Good luck i will be thinking of you with positive thoughts x

I think it's important to remember that bleeding isn't a typical symptom of Ovarian Cancer, nor is pain that would come and go. There are sooo many other things that can cause our symptoms AND a raised ca125, like fibroids, infection, endometriosis and even menstruation and ovulation! 
I was just getting over a chest infection when I had my blood test, and I was still bleeding, so I'm hoping my raised levels could be explained by one of those things

Was your pain abdominal, and did it go away after the bleeding? It could be possible you've had a ruptured cyst or you have a polyp or fibroid. 
Try to stay positive! The ca125 is not very reliable in woman who are not post-menopausal, and from what I r read, doctors don't tend to worry too much unless your levels are in the hundreds!!

Typically I've just gotten my period today (8 days late) and my gynae assessment is in 2 days! I hope this doesn't stop them being able to do all their tests!