Convinced myself I have Colon or Bowel Cancer

Hello

I'm new to the forum but need to talk as I'm driving my husband insane.

I am 44 and have a 19 and 11 year old.

I was diagnosed with Chrons 10 years ago and had 9 years of Azithroprine and Pentasa.

The December just before lockdown I had a terrible flare and it basically hasn't stopped since.

I have been on Biologic injections since April that are reducing symptoms by a bit. I've had Colonoscopys that were very inflamed ( March 2020 ) MRI that showed the same in my Ileum.

over the last few months I have begun having lower back pain on a everyday basis, cramps again and nausea along with the constant exhaustion which has effected my family life.

my yes last week showed ferritin levels extremely low and my stool test showed inflammation of a score 932 !!! Should be around 50/100.

I am now being sent a FIT test for coop or cancer detection.

im absolutely exhausted with worry ( which has been consistnat for last 2 years ) and I've convinced myself this is it I will have cancer.

my Aunty dies of bowel cancer 2 days ago.

sorry for my rant but desperate to get an answer one way or the other 

x

  • Hi Overthinker45

    Great name.  Sums a lot of us up.

    I too am playing the waiting game.  Long story short, I'm 45, change in bowel habits, calprotectin 175 and FIT 11.2 (so positive).  Been referred on the 2ww cancer pathway which seems unreal.

    Try to remember that a FIT test and any of the initial diagnostic tests are not diagnosing cancer.  They are really just highlighting something which needs further investigation.

    The fact that you had a colonoscopy in 2020 is a real positive.

    Regards

    Chris

  •  That must seem very unreal but yes remember just highlighting a problem not necessarily cancer.

    I'm just terrified something has been missed as they said on the colonoscopy I did have flat not dangerous looking polyps but they couldn't see into my ileum as was so inflamed.

    I also had an ultrasound where they said I had a stricture but when seeing consultant she said I didn't. She then also asked how my diabetes was and peg feed

    ( I'm not diabetic or being peg fed )

    just feeling very insecure but trying to remember what you have said.

    I hope you have your mind put at rest soon, please let me know how you get on.

     

     

  • I will do.

    Stay strong.

    Regards

    Chris