Hi Chloe, Oh no I'm so sorry to hear that. I know our immediate reaction is to worry, but hopefully it's nothing to be concerned about since the doctor didn't seem to be concerned at your ultrasound. Let us know how you get on. Good luck xxx

Thanks Sallx!

Just had my appointment- she said none of the lymph nodes looked concerning on the ultrasound but they did note a thyroid nodule, so I've been sent to get some bloods to test its functioning! Let's move on to my next worry now about thyroid cancer hopefully its also fine, she wasn't worried at all! 

All the best, Chloe

Hi all! Sorry I've been so quiet- I've just been getting through day by day.

My 'planned' chemo sessions have ended and I'm due to start radiotherapy in just over two weeks. I'm hopeful I won't need any more chemotherapy but I should find out for certain next week.

I hope you're all doing ok? Sorry to hear about your diagnosis Judgey - it sounds like we may be on a similar path.

My husband and I are taking the kids to Euro Disney (booked before my diagnosis) in just over a week and I've been signed off by the doctors to go so it's all systems go now trying to organise everything!

Lots of love and light to you xx

Hi Rose, 

So glad to hear your chemo went smoothly - hopefully you're over the worst of it now! If you don't mind me asking, how many cycles did you have? 

Less positive on my end - I had my first ABVD on Tuesday 22nd and I've been in hospital the last 3 days after developing heart palpitations on Tuesday and ending up in A&E til 5am :( No sign of being discharged before the weekend either unfortunately as my troponin (heart damage marker) is still too high. They think the Adriamycin is the culprit - it is known to be toxic to the heart so I guess I just got unlucky and it was a bit too much for my heart! I was meant to have the second chemo of my first round on Tuesday coming, but it will be delayed now as they need to decide what to do about the Adriamycin. Heart should be fine though, troponin levels are dropping and all the other scans have looked fine thus far, so fingers crossed it was just a bump in the road. I'm also due to get a PICC line put in my arm because they had a hard time getting my chemo cannula in (I'm 25 and apparantly "young" veins are deeper in your arm and make me a difficult patient ha!), so Ill have a permanent (until im done chemo) port in my arm from Monday. 

Bit of a rough journey and I've been feeling a bit sorry for myself in the hospital as I have never been admitted before! Hoping I'm just getting my "drama" out of the way early and it will be smooth sailing after this, rather than this being a sign of things to come!

Hope the rest of you are all doing well and have been able to put everything to the back of your minds after getting the all clear. Hope you have a great time on holidays Rose!! 

Hi Judgey, what an absolute nightmare. I'm so sorry to hear it's been so rough. I had two cycles of ABVD (so 4 doses in total) and the only issue I had was that the vinblastin caused tingling etc so I didn't have the last dose of that drug to avoid permanent nerve damage.

I had my PICC line in for the first dose and it's still in now - I'm really hoping they'll take it put next week. 

I'll be keeping everything crossed for you xxx 

Ah same as me so! Im supposed to have 2 cycles + radio too. I had scarsely any other side effects apart from achey + tired (the omeprazol completely dealt with the nausea, literally havent felt ill so far) so hopefully once they sort out my adriamycin dose or whatever the other three drugs wont cause any bother! 

Hope the tingling goes away for you, I've heard thats quite an unpleasant side effect! My mouth went a bit tingly for a few days, made everything taste like it was spicey, even yoghurt, very weird! 

Hope the radiotherapy goes smoothly for you x

Thank you Judgey, sounds like our plans are identical! 

I'm so pleased to hear that you've not suffered many side effects - long may that continue. From my experience they have LOTS of things to help if you struggle with side effects so if anything changes then all you need do is tell them and they can help.

I really hope you get out of hospital soon and that the treatment carries in drama-free. If you ever wanted to message me with a question please feel free to do so.

Lots of love xx

Quick little update - 

Just got out of hospital on Tuesday after 6 nights in a coronary care unit after developing palpitations and tachycardia a week after my first ABVD. Had an appointment with my consultant today about the plan going forward - theyre going to take me off ABVD and give me 2 cycles of GemCis (Gemcitibine and Cisplatin) starting on the 19th to give my heart a chance to heal. GemCis is what they usually give for recurrences/refractory cases, and my consultant said in the 200-300 Hodgkin patients he's seen over his career, he's never had someone have such a sensitivity to Adriamycin before! Hopefully no more nasty surprises in store for me! 

Hey, how are you girls doing? I'm back worrying again! 
 

I have two lumps, both sides, just in front of my ear on my jaw. They’ve been there 2 months. My bloods came back with high MCV and high MCH. I have an appointment Tuesday with a specialist and a scan on Friday. I am tired but that’s nothing new. The nurse who I've seen and spoken to just keeps saying to see if they go down. x 

Just re-read my previous post. Not very positive. Apologies all.