Swollen lymph nodes in neck

Hello, 

 

I've been following these forums for a while, but this is my first time posting. I found a swollen cervival lymph node approximately 6 months ago, on the left side of my neck. I kept an eye on it but I was too scared to go to the doctors, which I know is ridiculous, but I have anxiety and I suppose I just wanted to block it out. It's about the size of a pea at its biggest. It hasn't got any bigger, if anything it sometimes feels smaller and fluctuates in size, however a few more small one's have now popped up. Also the lymph nodes under my jaw are now quite swollen and tender. I did have covid about a month ago, and I've only noticed these new ones since then, however they are still there and now I'm worried sick. 

 

I've just seen the doctor, who had a feel and has referred me for an ultrasound and also a chest X-ray as a precaution. I knew he was going to do this, from reading all of your posts on here, however as soon as he did I broke down, as it made it feel so real. I know that's the only way to find out, but I have convinced myself that it's something serious and I can't ignore it anymore. I'm just so scared. I don't know what I'm looking for really, but I know many people on here have had similar experiences. If anyone would like to share their experience or if you're going through the same right now, then maybe we can support eachother. Thanks for reading. 

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  • Just an update in case anyone comes across this post. I will keep updating, as I know this forum has helped me so much and its always good to hear the final outcome, either way. 

    So, I called the hospital and I'm booked in for a chest x-ray in a few weeks. However, the ultrasound of my neck is going to be at least 16 weeks! So I have called a private hospital and I'm going to have my scan done there to speed things up. 

    I checked my notes from the GP on my online records and the GP is concerned and put the referral through as URGENT. However, there is also a comment stating 'doesn't appear to meet the 2ww criteria.' So although this is a good sign that the GP hasn't put it through as the two week referral, during my appointment he was concerned and said he wanted it done urgently. So on the one hand I'm thinking I should just wait as the GP can't be that concerned, but on the other hand, there is no way I can wait 16 weeks with this worry. So the cost of the scan will be worth it, even if just to save me 16 weeks of worry and give me some answers. Apparently I'll get the scan results there and then. X 

  • Hi, I am also playing the waiting game for a swollen lymph node diagnoses. My lump is in the right side of my neck and has been present for around 6/7 moths but getting bigger.

    I had a GP referral (non urgent) for an ultrasound which happened just over a week ago. The Dr took two biopsies and said that my results would be fastracked and the the hospital would be taking over my care. 

    I have an appointment with the haematology consultant on the 24th and the wait is really starting to get me down. I'm trying to stay busy and distract myself but it's tricky at times.

    Sending you strength and support xxx

  • Hi Rose, just wanted to check in and see how you're doing? 
    And also Sal and Judgey? Xx

  • Hi Danzie, 

    Thanks for checking in - I got a call last Thursday from my ENT consultant to say my biopsy came back as Hodgkin Lymphoma. Got a call again this morning to say I have an appointment with Haem/Onc tomorrow to discuss treatment etc. I'm fine, to be honest, it's the best outcome of the different possibilities and I shouldn't need surgery, just chemo. I'm going away to France on Saturday for a week with my family and my boyfriend and his family so that will be a nice break from it all. Hoping tomorrow will bring a bit of clarity about everything though!

    Not sure if it's ok to post here but I've started writing about my experience with this as someone with a background in medical science - you can have a look here if you like

  • Scary as it must be, I totally understand that it's the best of bad bunch (diagnoses wise) and that you have a very clear plan of action. I'm told chemo has come a long way and the side affects are far more manageable now, I'm sure you will find ways to get through it and simply look forward to being cancer free in the near future!

    As you can tell from these forums, it is so important to talk about experiences and listen to others so I'm sure your blog will be well received. 


    Enjoy France (I love it there!) and take care of yourself xx

  • Hi Sallx,

    Hope you are doing well!

    Just wanted to jump back in here in case anyone comes scroll this later. 

    I had finally had my ultrasound this morning! The doctor was super quiet and wouldnt say much, but I asked if I should be worried and she said not at all so I guess it's all fine! She said her speciality isn't the neck so wants someone 5o double check her report before she sends to my GP but it all looks fine to her. I've got to try and put this all behind me now!

    All the best,

    Chloe 

  • Hi ladies, 

    I hope everyone is okay? 

    Judgey, I am so sorry to hear about your diagnosis. I hope your treatment is going well and you too Rose...thinking of you both. 

    Chloe, I'm so pleased to hear you had reassuring news. Hopefully you can put it behind you now. Lots of love to you all. Xx

  • I'm pleased to hear your good news Chloe :-)

    hope you're well Sal? And Rose too? I think of you both often and hope that Rose's treatment is going smoothly. And you Judgey xxx

  • I'm not too bad thanks Danielle. Still get a little worried at times as to what these lumps actually are, as they're not showing any signs of going anytime soon. But oh well, what can you do?! 

    Aww bless, I think of you all too. It's strange that we don’t know eachother but I couldn't be more grateful for everyone's support during that scary time. I hope you're keeping well and your health issues have got better. Xxx

  • Hi Sallx,

    Just got a call from my GP to come in for an appointment on Friday to discuss the results. Freaking out again now because why would they want to see me in person if everything was normal?!

    Hopefully its still nothing. 

    Chloe

  • Hi Chloe, Oh no I'm so sorry to hear that. I know our immediate reaction is to worry, but hopefully it's nothing to be concerned about since the doctor didn't seem to be concerned at your ultrasound. Let us know how you get on. Good luck xxx

  • Thanks Sallx!

    Just had my appointment- she said none of the lymph nodes looked concerning on the ultrasound but they did note a thyroid nodule, so I've been sent to get some bloods to test its functioning! Let's move on to my next worry now about thyroid cancer hopefully its also fine, she wasn't worried at all! 

    All the best, Chloe

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  • Thanks Sallx!

    Just had my appointment- she said none of the lymph nodes looked concerning on the ultrasound but they did note a thyroid nodule, so I've been sent to get some bloods to test its functioning! Let's move on to my next worry now about thyroid cancer hopefully its also fine, she wasn't worried at all! 

    All the best, Chloe

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