Just an update in case anyone comes across this post. I will keep updating, as I know this forum has helped me so much and its always good to hear the final outcome, either way. 

So, I called the hospital and I'm booked in for a chest x-ray in a few weeks. However, the ultrasound of my neck is going to be at least 16 weeks! So I have called a private hospital and I'm going to have my scan done there to speed things up. 

I checked my notes from the GP on my online records and the GP is concerned and put the referral through as URGENT. However, there is also a comment stating 'doesn't appear to meet the 2ww criteria.' So although this is a good sign that the GP hasn't put it through as the two week referral, during my appointment he was concerned and said he wanted it done urgently. So on the one hand I'm thinking I should just wait as the GP can't be that concerned, but on the other hand, there is no way I can wait 16 weeks with this worry. So the cost of the scan will be worth it, even if just to save me 16 weeks of worry and give me some answers. Apparently I'll get the scan results there and then. X 

Hi, I am also playing the waiting game for a swollen lymph node diagnoses. My lump is in the right side of my neck and has been present for around 6/7 moths but getting bigger.

I had a GP referral (non urgent) for an ultrasound which happened just over a week ago. The Dr took two biopsies and said that my results would be fastracked and the the hospital would be taking over my care. 

I have an appointment with the haematology consultant on the 24th and the wait is really starting to get me down. I'm trying to stay busy and distract myself but it's tricky at times.

Sending you strength and support xxx

I think that's such an amazing mind set to have. Thank you for sharing this with us Rose and good luck for your final results. Please let us know how you got on. Will be thinking of you.xx

If you don't mind me asking, how old are you and what symptoms did you have? Did you have more than one lump? I'm scared as I found another one yesterday on the other side of my neck. I didn't wake up sweating last night which was good though. I just hate the waiting game. It makes me feel so sick. 

Hope you're all doing ok xx

Hi! Thanks for thinking of me - all positive vibes gratefully received xxx

I'm 41 and in terms of symptoms the only thing I had was a swollen lymph node on the right hand side of my neck. It is rock hard and about 3cm. It continued to grow over a number of months which sent me to the GP. Funnily enough the GP referred me as a possible thyroid issue rather than any thing else. It was the doctor who performed the ultrasound who first spotted something that wasn't OK and took biopsies immediately. 

The only other symptom has been losing weight (which I'd attributed to grief) and tiredness (which I attributed to being a mum!)

I hope this helps a bit but if not please do ask me anything else.

Sending you strength and positivety xxx

Hi Rose, 

Hope you don't mind me messaging! I just wanted to say your positivity is truly amazing! I just know you are going to smash your treatment! 

Did you receive your final staging/ treatment plan?  Onwards and upwards from here!

I did want to ask how quickly your node grew/ was it a massive jump? I'm sure mine has gotten bigger over 7 months but not drastically. 

All the best, Chloe 

Hi Chloe, not at all! Thank you xx

It was a steady growth but it wasn't me that saw it really as I suppose you don't always notice these things yourself! It was my sister and my best friend who noticed the changes between gaps in seeing them who noticed it growing.

I did get my plan! Chemotherapy starts Monday for 2 months (ABVD) and after a clear PET scan I'll move on to radiotherapy for 2 weeks. Nothing compared to others but, in the words of my consultant, aggressive treatment for a shorter time span works best for my type of cancer.

I hope that helps but please shout up if not!

Xxxx

Best of luck for Monday, Rose. Will be thinking of you. Hope it all goes well. Thanks again for sharing everything. You're so helpful.xxx 

I have my scan at 8:30 tomorrow. Saw the consultant today who thinks they are reactive nodes. Scan will hopefully confirm this. Xx

Thanks for thinking of me xx

Good luck for your scan tomorrow. I have a new found love and respect for radiologists and radiographers! :grin: 

Thank you so much. Getting anxious tonight xx

I know it's a stressful. You could try your favourite film or box set this evening? Something comforting that you can half focus on while you try to relax?

And a nice warm drink always helps me xxx

Thank you for being so kind and thoughtful, Rose. I really do appreciate you taking the time to reply. Decided to watch The Apprentice tonight ️ Xx

Hiya, 

Im in a similar boat to you all. On Sunday noticed a large (golf ball sized) lump behind my collarbone, and subsequently found about 3 more smaller pea-sized lumps in the area. All are very hard, not sore and sligthly moveable/wiggle-able. No sore throat etc or any other signs of infection.

Went to the doctor on Tuesday, had bloods taken that day and was referred for 2WW. 

Got my letter today saying I've an appointment at the hospital ENT department on the 7th - does anyone have any idea what to expect from this appointment? Will they likely take a biopsy? I haven't had ultrasound etc done as the doc wanted me to be seen ASAP. I've also had itchy legs for the past month and occasional infrequent night sweats so I am quite worried it might be lymphoma. The next 10 days waiting is going to be extremely hard :( 

Hiya, 

Im in a similar boat to you all. On Sunday noticed a large (golf ball sized) lump behind my collarbone, and subsequently found about 3 more smaller pea-sized lumps in the area. All are very hard, not sore and sligthly moveable/wiggle-able. No sore throat etc or any other signs of infection.

Went to the doctor on Tuesday, had bloods taken that day and was referred for 2WW. 

Got my letter today saying I've an appointment at the hospital ENT department on the 7th - does anyone have any idea what to expect from this appointment? Will they likely take a biopsy? I haven't had ultrasound etc done as the doc wanted me to be seen ASAP. I've also had itchy legs for the past month and occasional infrequent night sweats so I am quite worried it might be lymphoma. The next 10 days waiting is going to be extremely hard :( 

Hiya, welcome to this thread! It's easy to put two and two together and get five. Night sweats and itching are generic symptoms that can happen for dozens of common and legitimate reasons. Once you become worried about lymphoma, you undoubtedly notice these things whereas you wouldn't have given them a second thought. I know that has certainly been the case for me. That said, if you do have lymphoma, know that there are very effective treatments and you will cope. As others have said, our dr's and nurses are flipping amazing! I went to see an ENT consultant and he did an examination and ordered an ultrasound. That was it for that appt, waited two weeks to have my US. I believe they can take biopsies there and then if the nodes are over 1cm in diameter and/or they want to look at them further. If they're reactive glands, they will usually tell you straight away. 
Trust the process, push for tests and the care you think you deserve and if you've read this whole thread you will know you need to keep yourself distracted to keep the anxiety at bay! You can do this. And you can rant here anytime and one of us will be here to be your cheerleader. Keep us updated xx

Hi Judgey,

in case it's useful my husband is at a similar stage but slightly earlier. He got his initial appointment with the consultant quickly after an urgent GP referral, and was then referred by the consultant for "urgent" ultrasound and fine needle aspiration biopsy of the lump, which he said should be in one week or two at most. When we got the appointment it was a full month away, in mid Feb! It felt terrible to know we were going to have to wait so much longer than we should. Anyway I decided to let the consultant know so I sent him a postcard. A couple of days later we had a call asking my husband back to his clinic the next day. We went yesterday and the consultant did a biopsy then and there, without the ultrasound. The lump is quite large, and near the surface. We're expecting the result within a week.

Waiting times for scans are very long at the moment in many places apparently so you may want to ask how long you will have to wait, and whether you can have a biopsy without the scan. 

I believe my husband's blood test results were more or less normal, and he has no symptoms except the lump which appeared about three weeks ago.

Good luck.