Hi Rose, 

How are you doing? Have you had any news on your results yet? I really hope you have had some good news by now. Did you manage to have a nice Christmas? 

I hope you are doing well Danielle and hope you've had a lovely Christmas too.

I have unfortunately let worry get the better of me over Christmas. When this first started I had the lymph nodes in my neck and I did feel a little something near my collar bone just before the ultrasound, but barely noticeable and I had to search for it. But just before christmas I noticed quite a few lumps in my collar bone (supraclavicular lymph nodes) both sides. They are quite big, they do move around and feels the same both sides. You can't miss them. I know we shouldn't google, but I have and apparently having swollen lymph nodes there is always concerning and more often than not something serious. I am trying to stay positive though, but it really does have me worried. 

I have made myself go for the chest xray today, as it was a walk in appointment and they've been closed a lot over Xmas. I was too scared to go, as I'm convinced they'll find something, but I made myself get it out of the way. It was over very quickly, literally in there for about a minute. So now I have to wait for those results. 

Sorry for the moaning, just feel like I'm back to square one again. Xxx

Merry Christmas Sally and Danielle - hope you've been enjoying Christmas?

Oh Sally, I'm sorry to hear that you're feeling anxious again :cry: I'm really pleased that you went for your x-ray- that's excellent. From memory the results from an x-ray don't take very long to read? You may be able to contact your GP for the results in the very early new year - you could also mention at the same time about the lymph nodes you have near your collar bone?

How big would you say the nodes feel? Could you take a photo of them? Just thinking the more information you can give the GP the quicker they can triage you and refer you onwards if needed. Do you have e-consult where you live? That may speed the process up a little more too?

I'm afraid I still have no answers but last time it took this long it was because the results had gone to the lymphoma panel for review so we'll see. Fingers crossed I'll hear in the very early new year as its so stressful having to wait.

Sending you both strength and light xxx

Ahh Rose, I am so sorry you still haven't had any news. It really is awful to have you waiting this long. I'm sure they're trying to hurry it up, but it's really not fair on you. I hope you have still managed to have a nice christmas and hopefully you'll hear very soon. You deserve a pamper or a nice treat of some sort, for being so strong and positive throughout all of this. 

I asked today and they said I should have the results within 10 days. And yes, I can do an online consultation and send it to my GP, so I thought about maybe doing that to let him know whilst I wait for the chest xray results.

I'm not really sure how big they are. It feels like there are about 3 each side, just above the collarbone in the hollow part. But it's hard to tell whether they're connected to each other or separate, if that makes sense. Plus there are at least 3/4 on the left side of my neck still. 

If the chest X-ray comes back clear, I will be very surprised but that would put my mind at rest a lot. I still think these nodes would need looking at, just to be on the safe side, but I'd feel a lot more relaxed about everything. I was very relieved after the ultrasound and I am still taking some positivity from that, thinking surely that doctor would have spotted something, but now it's getting worse so I just don't know what to think. 

Let's hope we have some good news to start 2022. 

Please let me know how you get on when you hear anything. I am thinking of you and keeping my fingers crossed for you. Xxx

Hi Sal, oh no that's so terrible that your worries have amplified, so sorry to hear that :-( I have made a promise to myself to stay away from Google. It makes everything so much worse. One of my swollen nodes is on my collar bone and I did the exact same thing- I googled that and was told it was nearly always bad news and I freaked out (hence ending up on this forum!). At my ultrasound, they couldn't even see the node on the screen though I can definitely feel it! Remember that there are hundreds of people who have had nodes swell in their collarbone after having the vaccine, so that could be the cause too. For your own peace of mind, don't dally- speak to the GP asap and get the ball rolling. It will help you feel more in control. I know we're all terrible for doing this but don't diagnose yourself! Keep busy, plenty of distractions and plenty of self care. Well done you for going and getting the chest x-Ray and being so proactive. 
 

Rose- hope you had a lovely Christmas. Can't wait to hear from you with some good news in the new year!!! Xxx

Ahh thanks Danielle. 

I have read about a lot of people getting them after the vaccine so I'm really hoping it is that. But I did have my vaccine ages ago and they only seem to have popped up now. It feels like every time I feel positive and stop worrying, I find something else. 

I'm just hoping and praying that the chest xray is clear. 

How are you feeling Danielle? Are your stomach issues any better? Xxx

Hi Sal,

My nodes didn't get enlarged until months and months after I'd had the vaccine, so I wouldn't link it to time. You'll get to the bottom of it I'm sure, and it's usually the simplest explanations in the end. Please keep talking to us if you feel worried, no need to suffer alone. fingers crossed for the chest x-Ray being clear. You are being a total trooper, not much longer to go til you get your results. 

My stomach issues seem to have eased a little. GP did more tests, all came back clear which is reassuring. So it's looking like IBS at the moment, which I can deal with. 
 

hope you had a lovely NYE, I went for a meal and a show with the family, it was lots of fun. We are going for a dip in the sea shortly (cold water therapy!) to see in the new year! 
 

Danielle xx

Hello both,

Just checking in to see how you're both doing?

xx

Hi Rose,

I've not been too bad thanks, my anxiety seems to be settling a little and I had a letter from the hospital to say they didn't think the results of my scan were concerning so I'm feeling a little more reassured. 
 

How are you?? Have you heard from the consultant yet or are you still waiting?? Xx

Oh Danielle, I'm so pleased to hear that - excellent news xxx

I do, finally!, have my biopsy results and a diagnosis.

I have Hodgkin's lymphoma.

It's hugely treatable which is great. I'm waiting for one final scan and then I'll be starting chemotherapy followed by radiotherapy. 

All is going to be well though and I'm so pleased to have a plan in place.

Sending lots of love and fingers crossed Sally's OK too xxx