Oh no, such a shame you had to rearrange!! Hopefully they will fit you in some time soon? 

I went to my GP about the pain in my side and I am having bloods and stool sample. So another lot of results to wait for On the plus side, the gland behind my ear has reduced and seems really small now. Still have the pea sized lump in my collarbone which worries me, but I take solace from the knowledge that yours was benign Sallx so sometimes these things happen. Have your glands started to go down yet, or are they still there? 

Hope that Rose has heard back from the consultant now?? Xx

Hey both! Sorry you've both still got some waiting ahead.

I still haven't heard anything and don't have a number to chase anything so, apart from an appointment next week with the consultant I have no idea what's going on!

I'm frustrated and so fed up of waiting on top of the anxiety of still not knowing the biopsy outcome.

Still, I'm sure all will he ok soon!

Stay strong both xxx

Update to say the hospital phoned today and I have a CT scan this Saturday at 9am and then a consultant appointment on Wednesday so hopefully I'll know something then xx

Hi Danielle, 

Aww I hope you get these tests sorted soon. The wait is horrible. But I'm glad your doctor is getting it all checked out for you. Where abouts is the pain in your side? 

Oh I'm so glad that the gland behind your ear has gone down. That's very reassuring! Well I've had a couple of mine for a while now so I'm not expecting them to disappear really. Although they do sometimes feel much smaller...they seem to fluctuate in size but they've never actually grown, if that makes sense.

The lump on my head has gone. Although I wasn't overly worried about it being connected, I'm very pleased that it has disappeared! I haven't actually been checking them much either. I am still worried, but it's much better now I'm not constantly checking them. 

I haven't heard anything about my chest x-ray yet, so hopefully I can get another appointment soon. 

I hope all goes well with your tests and you get some positive news soon. Xxx

Hi Rose, 

Oh I'm so sorry to hear you are still waiting! I'm not surprised you're feeling fed up and frustrated with it all. I really feel for you and can't imagine how difficult it must be. 

I'm glad they've now been in touch and you have your appointments sorted. Did they have any idea whether your results have come back, or was it just the appointments department who called you? 

You are being unbelievably strong and must have so much patience. This horrible wait will be over soon and I'm sure all will be okay too. Please keep us updated...I'll be thinking of you. Stay strong xxx 

Hey!

So, still nothing conclusive but today I had a CT scan to check my neck, chest, abdomen and pelvis.

My consultant has ordered an emergency referral to ENT as she has said the lymph node needs to be removed ASAP to be fully biopsied and also due to it's size.

I'm still hoping it's not lymphoma but pleased whatever it is will be removed soon!

I have a telephone consultation with my haematology consultant on Wednesday and will hopefully hear from the ENT consultant soon to book surgery.

Fingers crossed for a worry free Christmas time soon! 

Hope you are both OK and that things are settling down slowly? Xxx

I'm so sorry to hear that! I was hoping you would get the results and that would be the end of it for you, but like you said, it's good that it's getting removed and checked out. Let's hope no news is good news. 

Yes I really hope this is all out of the way for you by Christmas. Honestly, you're being unbelievably strong and staying positive which is wonderful. 

I had a call yesterday to check why I didn't go for my chest x-ray, so it appears they didn't get my message, but there was no way to speak to anyone. So that should be re-booked soon hopefully. 

I hope you both have a lovely weekend xxx

Oh dear Danielle, I hope your tummy settles soon. Any time frame on your ultrasound?

Sallx - gutted your message hadn't been received about the xray - have they given you any indication of when it could be done?

I saw the ENT consultant today who did a camera up the nose and down my throat - gross! He said my CT scan results were back and it was clear! Yay! Only showed the one lymph node and this was confirmed by the camera today - so that's great!

He also said that the ultrasound scan said 'probable lymphoma' and my biopsy result was 'probable lymphoma' - it was then sent to the lymphoma panel who said it was inconclusive as they didn't have enough tissue left to re-test.

I may have to have another biopsy :cry: He said he's presenting my case to the whole cancer MDT next week to decide if it should be treated with radiotherapy before removal or if it should be taken straight out. So, more waiting! 

Again, I'm keeping positive that it is not yet confirmed as cancer and that, if it is cancer, it will be easily treated. Just hope I get a diagnosis soon :happy:

This chat has been such a reassurance as I feel like I have to stay strong in front of the kids so it's nice to be able to offload to you both - thank you xxx

Hi Rose,

blimey, they've been putting you through your paces, haven't they?! My partner keeps saying to me- it's not cancer until they tell you it's cancer, and that's what you have to remember. As you say, worst case scenario it is a lymphoma and sounds like they are already formulating a plan. As you probably know, lymphoma is highly treatable and in most cases, completely curable, particularly if you only have one as it's likely early stages. But no need to go there in your mind until they tell you more. The camera up the nose sounds icky, you absolute solider going through all these tests.. you're my hero right now!! 
 

My stomach has really settled. I've been drinking this powdered tea with vitamins in it for the last month or so (to compensate for the weight I'd been loosing through anxiety).. anyway, I decided not to drink it today to see if that helped and.. it really has.. so I actually think I might be intolerant to one of the ingredients! My tests for inflammation in the bowel all came back clear, so hopefully I've solved the problem. 
 

My ultrasound is in a weeks time on Dec 15th. Hoping for a good result. 
 

Please keep us updated Rose. I think you're dealing with this amazingly- us mums have no choice but to keep it moving hey?! It will all be OK in the end regardless xx

Hello both of you, 

So sorry, I hadn't seen either of your updates. I came on here to ask how you were both doing and saw you'd both posted. 

Rose, I'm so sorry that your biopsy was inconclusive and they've stated 'probable lymphoma'. As you said, it's not confirmed so try to stay as positive as you can, although I know that will be incredibly difficult. I have seen posts where people have been told it's almost certainly lymphoma, for it to come back all clear. So there is still hope and I pray you get some good news soon. I honestly admire how strong you seem to be and I'm so happy we all have eachother to talk to. 

Danielle, you sound exactly the same as me. The doctor felt multiple swollen lymph nodes in mine and even on the ultrasound, but the doctor who did the ultrasound wasn't concerned as he felt they were reactive lymph nodes. As you know, it put my mind at rest massively, but then I occasionally still feel them and it starts my worry again. Like you, I also have stomach issues, which I haven't been connecting to this. I was diagnosed with IBS years ago, so I've been putting it down to that. Last week it was awful...I was in pain, constantly going to the toilet and it seems to have eased off again now. I really hope you also get some answers soon. It must be so difficult with all of these symptoms and the waiting. You're being amazingly strong too. 

And I know exactly what you mean about separating the anxiety. I don't know what to trust anymore. I know the symptoms are real, but I dont know whether I am over worrying or whether I'm noticing more just because if my anxiety. I still haven't heard anything about the chest xray yet. I definitely want to have it done but I'm also terrified as I'm convinced they'll find something wrong. Again, that may be my anxiety but it really does take over and convince you of the worst. 

Hope you both manage to have a lovely weekend xxx