Hi everyone

I am new to this so not really sure what I am doing, but hopefully this is ok to post. 

From Dec last year to March this year I went through a number of investigations triggered by several swollen lymph nodes in my neck. I had ultrasounds, MRI head and neck and chest CT which were all clear. Blood tests showed high levels of EBV so it was concluded that I had had a reinfection of glandular fever and the glands were still swollen. 

A year down the line and I still have swollen lymph nodes in my neck, and also armpit and groin. The ones in my groin I think are a little larger but then I could be imagning the worst. 

They are generally painless although I get some occasional aches under my armpit. But my general health feels like it is deteriorating. I am always tired, get shivers but no fever, regular sore throats and always feel like I have a slight cold or I am coming down with something. 

I've also been experiencing severe aches and pains around my shoulders and collarbone, which the gp thinks are muscular but I am concerned there might be something else. I have a raised area on my collarbone, which is hard but again the doctor thinks this is inflammation caused by muscular strain but I haven't injured myself. 

I have now been referred to ENT again but I am really worried. Could something have not shown up in my previous scans? Could anything serious have developed between March and now? 

If anyone has had any similar experiences I would love to hear from you.