Told I may have cervical cancer at my colposcopy. Terrified

Hi I went for a colposcopy yesterday after receiving high grade servere dyskaryosis and HPV positive results from my recent smear. 

I had been a complete mess since finding out and had been reassured by friends saying they had had similar results and although uncomfortable the nurses will support you and listen to your concerns. 

Skip to yesterday the whole process was traumatic and made me feel terrified. 

I walked in to 4 ladies in the room,  senior nurse asked me to sit down explained who was in the room and why( one was training) she explained what she would do and that she would talk to me all the way through.  Once changed I laid on bed legs moved in position and she started. I was asked a couple of questions by other ladies but that is all the communication I received through the whole process and a tissue when I got upset.  When she had finished she said you do have high grade servere dyskaryosis and if I'm completely honest is looks like you could have early cervical cancer at the very top. I can't be certain as it may be high grade cells.

Not one person in the room gave me any compassion or said anything to reassure me,  I then went on to ask questions but felt nothing was answered.  As I left I didn't even get a good bye. 

I have a appointment to go under general anaesthetic for them to have a closer examination booked in the next 2 weeks. 

This has just sent me over the edge,  I have always had normal regular smears and at 42 have never had any problems. 

I don't know what to do with myself and am an emotional wreck trying to hold it together for my 3 children.  But inside I am petrified.  Any advice would be greatly appreciated x

  • Hi Pp79

    I’m really shocked reading of your traumatic experience, which quite frankly should never have been like that. You do not have to have people in the room other than the staff carrying out the procedure and should have been asked if you consented to this before everything started. 

    The nurse should not have said what she said. It is not up to the nurse to assume you might have cancer, and only the biopsy can confirm it. And she is not a gynaecologist so this is only her opinion, which she should not have voiced. Obviously she had no idea of the effect on you of her thoughtless words. 

    Try not to get too far ahead of yourself for now, although I know that will be extremely difficult given what she has said to you. It is POSSIBLE that the diagnosis may be an early cancer, but equally possible that it may be severe dyskariosis (CIN3), which is not cancer but pre cancerous cells which should be removed. 

    Even if there is a cancer diagnosis, it would be very early stage and can be very effectively treated. My gynaecologist saw my cervical tumour, which was nearly 4cm, and STILL didn’t mention the word cancer until my biopsy results came back, so that nurse’s behaviour was inexcusable. I was treated with great compassion and warmth by all of the nurses I dealt with who explained everything to me, and one actually held my hand. I am astonished that you experienced women who had no compassion for another woman. Personally, I would register a complaint about what you went through. It was just outrageous. 

    So it would seem that you are to have an examination under anaesthetic next, which will give a better idea of what is going on. I had that procedure and had a biopsy taken and was in and out of hospital within a few hours-very straightforward. 

    If there’s anything I can help you with, please ask. I’ve been through cervical cancer twice in the last 3 years so although I’m not a medical professional I do have a great deal of personal experience. I’m so sorry you’ve had such an awful experience and hope that things from now on are much better for you. x

  • Thank you for your response, 

    I'm a complete mess automatically thinking the worst now and not knowing where to turn for support x

  • You’ve had a very traumatic experience, so it’s not surprising you are feeling like this. I would suggest perhaps phoning the helpline on the forum here to chat with one of the nurses, who I’m sure would be able to reassure you. x

  • Thank you,  I will call next week when lines are open.  

    My eldest son put a complaint in after seeing how much it effected me. He had a call from them today apologising and they are apparently going to call me.  

  • I’m glad that your son registered a complaint. It’s absolutely unacceptable to be treated in this way, and hopefully your horrible experience won’t happen to anyone else.