Cervical Cancer? HPV positive & bleeding

Hi everyone, 

I'd really appreciate any advice if you've gone through the same thing...

I received a letter telling me I'm HPV positive and have tested for abnormal cervical cells - low grade dyskaryosis. So I'm scheduled to have a colposcopy, but I have a long wait. 

I'm not usually one to panic but I haven't been able to stop crying, as I've also been experiencing some cervical cancer symptoms for the past 6 months (bleeding after sex) but I thought this was down to my pill, which I stopped using, and changed to the IUD. 

I'm going to try to push my colposcopy forward but my google searches are telling me I have a lot to be worried about. 

From reading through the forum it doesn't seem like many people also had symptoms - do you think I can use this to move my colposcopy forward??? I can't help but think the worst. 

Does anyone ever receive letters telling them they have high grade dyskaryosis?? I.e would I have gotten an earlier appointment if cancer cells were already detected?? 
 

please advice if you can, would appreciate any help 

  • Hello MG1122D,

    Welcome to Cancer Chat! Poor you you sound rather worried and there's one thing I would strongly advise you stop doing right now and it's searching anything on Google. Don't worry we are all guilty of doing it but one thing is for sure it will not make you feel any better as it inevitably brings up the worst case scenario and is totally unreliable. 

    The good news is that low grade dyskaryosis is easily treatable as many members of the forum who have had treatment for abnormal cells will be able to testify. There is in-depth information on our website on these abnormal cervical cells and you will see there that having an abnormal screening test result does not mean you have cancer but that it is essential to have the treatment to remove any risk of these abnormal cells developing into cervical cancer. 

    Have you spoken to your GP about the bleeding after sex you have been experiencing? This is definitely something to flag if you haven't done so already and you could try and see whether your GP thinks this is a good reason to try and move your colposcopy forward. It's a shame that the wait is so long at the moment but the main thing is that you are on the waiting list and it's only a matter of time now - and hopefully not too long - before you can get the treatment you need.

    Our colposcopy page  will also guide you through what you need to know ahead of your appointment. I am not sure myself whether having high grade dyskariosis would have made a difference in the timeframe for appointments but it's obviously better for you that the changes are low grade. Perhaps you could give our nurses a call on this free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm and they will be able to shed some light on this for you. 

    I hope that other members of our forum who've been in a similar situation before will be along shortly to share their experience with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Hello MG

    Please, please don’t use google to try and get answers as it will scare the life out of you and is not helpful at all. 

    Low grade dyskariosis means that the changes seen are mild and easily treated, and even high grade dyskariosis is still not cancer. The smear test is a screening test for abnormal cells, not a diagnostic test for cancer, so all it can tell if you test positive for HPV and they test the cells, is that they are abnormal. The colposcopy is necessary to get further information. 

    I appreciate that the wait for this might be long at the moment, but your situation is not going to change while you wait. Symptoms such as bleeding after sex can have much less serious explanations than cancer, so I wouldn’t rush to worst case scenario at this stage at all. But I would tell your doctor, as it’s a symptom that should be checked, and it may enable you to get a quicker referral. x

  • Thank you so much for the information. This was really helpful 

  • Thank you! Appreciate the help, it put my mind at ease