Hi SammyMummy,

I am so sorry to hear of the worry you are having about your little girl. I am not a doctor, but I am a mum to 2 and a gran to 2. There could be a number of less serious causes of the symptoms that you describe. If the oncologist wasn't concerned, why not go back and have an in-depth talk with your GP?.

It would be worth writing down time lines and symptoms from previous occasions where you can remember, but also to keep a diary of days when she is not so well and take this with you. This should help your GP to make a diagnosis. My daughter had similar symptoms at the same age. She turned out to have chronic asthma. She was given inhalers for this at a young age. She was always a poorly child, but is now a 42 year old adult, who keeps well provided that she takes her medication regularly.

I hope that you will get a diagnosis soon and that it is something that can be easily dealt with. As mum's we know when there is something wrong with our children, so keep pushing until you get some answers.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Thank you so much for responding to this. It means the world to me to have some support. I cry and cry. When she has these night sweats I look at her and my heart breaks, I'm certain something is not right and her symptoms are all very worrying. I'm terified of losing my daughter or even her being sick. I don't know how il cope, the thaught is killing me.

the doctors don't seem to know what's wrong but refered her to the oncologist and he said her lymph nodes weren't quite 1cm so they couldn't biopsy them but he hasn't closed it he's kept it open if I need to go back to see him, I truly think at this point they don't know or they do know but waiting for things to get worse (lymph nodes grow) for them to biopsy them. 
my heart hurts so much and my life has been a battle the last few months, I'm not me anymore.

Im so so glad your daughter was ok and thank you so much xxx

Hi SammyMummy,

Have you always seen the same GP in your practice? Seeing another doctor in the practice can be helpful, as it gives you a second opinion. When did you last see the oncologist? I expect that you'll need to leave some time between your last appointment and her next to enable the doctors to get a biopsy.

I know how hard it  is when you know that something is wrong and you feel that you are getting nowhere.  Don't give up. You will get answers eventually, so try to put your positive face on. Make the most of the time you have with your precious daughter and don't let dark clouds overshadow your time together.

I do hope that you get some answers soon. In the meantime, remember that we are always here for you.

Kind regards,

Jolamine xx