FIT test results - please help

Hi there 

I am 44 and have just had a FIT test result back, apparently the level is 8, only when it's past 10 it is deemed urgent. The normal is apparently 0-5. My blood tests were fine. I suffer with IBS and have done for years. I also have early stages of divirticulitis too, this was diagnosed 8 years ago. I am so worried I have cancer. I am waiting for a referral to the hospital, I am unsure what their referral is for. Has anyone  else had a FIT test that came back postive? What was your results like and any outcome from a colonoscopy? 

thank you in advance

Sheena 

Parents
  • Hi 

    I had a fit test done it was >400 I was referred to the hospital under the 2 week wait pathway I had a colonoscopy and they took 10 biopsy's. they may do the same thing for you. 
    hope you get sorted soon and everything is good news. 
     

  • Thank you for your reply. I'm not sure how they score it and if 8 is bad considering over 10 is panic stations according to a doctor I spoke to today. He didn't tell me if I should worry or not to worry. I am hoping my doctor who I am speaking with Friday will have more information for me. I really am hoping they get me in ASAP for a colonoscopy, the worrying is making me ill. I had a sigmoidoscopy in 2019 and a colonoscopy done about 8 years ago. Both were clear then. Not sure how quickly tumours can develop ‍♀️ I am trying not to cry all the time, I am so worried I have cancer and will leave my kids behind, it's my worst fear. My little girl is only 5, she is my youngest. It's breaking me just thinking about it 

  • I feel for you it's a horrible feeling I feel the same my doctors are useless if I'm honest but hopefully they will get you sorted out ASAP and everything's good and I don't know about tumours and how quick they grow the Nhs website is good for fit results it says anything more than 10 is positive but it dosnt mean cancer immediately yes it's a possibility but there is loads of other reasons there's blood in your poo could be ibd ibs and a few more. They normally get it done within 2 weeks it's the waiting after that's horrible your left in limbo till you have a answer but hopefully your all good and it's not cancer try to think positive I know easier said than done I'm the same worried out of my mind but fingers crossed for you lovely 

  • Thank you. I will take a look at the NHS page get the grading. I didn't see that part. I knew the answer wasn't going to be everything is fine, or they wouldn't have wanted to speak to me. Not really sure what I expected. I guess I was hoping for a bacterial infection or something.

    I hope you get sorted and all is well for you I appreciate your messages. 

    take care of yourself 

    Sheena 

  • I thought under 10 was a negative/normal result? And meant that cancer was very unlikely?

  • I have no idea. He said 0-5 was normal. 8 is still a positive test. I am speaking with another do it on Friday, I am hoping she will be more informative

  • Hi sheen2326 

    From what I was told by my gp if it's <10 it's negative and over 10 is positive there are a few websites to look on and might give you some good ideas to ask your doctor on Friday I put in google fit test results uk coz they do have American ones that are not relevant but I think the best thing you can do is write down all your questions and take it with you to your appointment tell the doctor how you feel and you want clear answers you can take someone with you or ask for a chaperone to be there when your talking with the doctor. 
    I hope you get sorted out and try to keep thinking positive it's not all doom and gloom but I completely understand how your feeling I feel the same way but I try my best not to let it get me down I say to myself it is what it is I can't change it all I can do is work towards a better future with as much positivity as I can. 
    as I say hope you get sorted ASAP and it's nothing to worry about. 
    All the best 

    ben

     

  • Hi, just wondering how you got on? I had another FIT test done and the result came out at 22 this time, 8 the first time. So I now have an urgent referral for the hospital. 
    I am so anxious and worried. Although the doctor I spoke to today said most people with colon cancer tend to be in the hundreds, so 22 is still not a major worry. That doesn't help me much. 
    I hope you have got some answers. 
    sheena 

Reply
  • Hi, just wondering how you got on? I had another FIT test done and the result came out at 22 this time, 8 the first time. So I now have an urgent referral for the hospital. 
    I am so anxious and worried. Although the doctor I spoke to today said most people with colon cancer tend to be in the hundreds, so 22 is still not a major worry. That doesn't help me much. 
    I hope you have got some answers. 
    sheena 

Children
  • Hi Sheena 

    I haven't had my results yet there was a mess up with the doctors they have my colonoscopy report which I have too but no biopsy results I had loads of trouble this past week so I have just give up now. 
    man's that score isn't too bad the threshold is 10 so 22 isn't that bad but I understand that your worried and anxious but just know you have support hopefully it's all good news for you 

    and you get some answers soon. 
    All the best 

    ben 

  • Hi Ben, that's dreadful you are still waiting. Hoping you get answers soon. I know giving up feels like the only way, but please don't, keep chasing and calling. It's really not acceptable. 
    I have no idea if the scale / measurement of this FIT test, I was told over 10 was panic stations, but another doc told me not to worry. I have no idea what score is bad and when to worry now. So I'm just going with the flow. When they told me 22, I was shocked and so was my husband. I get blood all the time, visible, so it is a worry. Just trying to hold it together. 
    I have everything crossed for you. Take care of yourself 

    Sheena 

  • If there is visible blood, then you would really expect the test to be positive as that is what it is testing for. Blood can be caused by many things, including very minor ones like hemorrhoids and more serious ones like IBD and polyps. All those things are probably more likely than cancer.

    An urgent referral does not mean they think cancer is likely. I think over 90% of those who are referred urgently do not have cancer. The doctor who said over 10 was cause for concern probably just meant that was the cut-off for an urgent referral or the point at which they have to consider cancer as one of the many possibilities, not that you should be panicking at that point.

    Obviously, I'm no expert and I am just saying what I've read on this forum, elsewhere online or heard from doctors, but I am pretty sure that just getting a positive FIT test in itself does not mean cancer is likely.

    I am just a few years younger than you and the doctor told me that at our age, cancer is still very unlikely. Now, I did not have a positive result but I did have visible blood and at that point, he did not even know my result and said it was very likely to be positive, given that there was visible blood and I shouldn't worry about that.

  • Thank you for helping me to be a little more positive. I guess it doesn't help when you have people in your family with cancer and lost loved ones from it. And know if people much younger than us who have bowel cancer. Especially when you have suffered for years, with symptoms pointing that way, thinking it can't be nothing serious being in so much pain on a daily basis. But you are right, it could be so many other things causing it and that's what I'm praying for right now.  
     

    thank you for your message, much appreciated 

    Sheena 

  • Hi Sheena 

    how are you doing. 
    man's thank you for your message I understand what your saying but I don't have the fight in me anymore I have been messed around so much they don't realise that it's affecting me. 
    hope your well 

    ben

  • Hi hun hope all is well I was wondering how the colonoscopy went and if they found the problem after xx

  • Hi ya. Thanks for thinking of me. They removed a lot of polyps but thankfully none were cancerous. I have to go back in 3 years to have another one done. But tbh it hasn't really solved by problems I've been having. Just something I have to deal with I guess. I hope you are ok? X 

  • Aww thats good news ...sorry you are still having to deal with problems ...I'm having a colonoscopy next week due to positive fit test reading 24 ...I'm abit nervous for having the procedure was wondering if you could tell me how it is please hun xxx

  • It's absolutely fine. Mine was anyway. Felt like it was all over and done with very quickly. You are awake but very sedated, quite an odd feeling really. The recovery for me was a little longer than I'd hoped. Pains inside for about a week but nothing ibuprofen or codydramol couldn't handle. I certainly won't be stressing over my next one or being so anxious, it was far less of an ordeal than I thought it would be. You'll be fine xx