Waiting for breast clinic referral apt

Hi, I've been reading the posts on this forum for a few weeks now, everyone is so supportive and caring, it's hugely helpful full of so many brave and inspiring people.

Last month I found a patch of itchy skin like eczema by my nipple, after looking on Dr google I went straight to the GP. After hydrocortisone cream didn't much resolve it I was referred to the breast clinic, GP also thought she could feel a lump, but could be thickening (I can't feel it). Anyway, my apt is next Thu. The waiting is very hard, emotions up and down. One moment I'm in control, the next not.

From this site I'm aware of what to expect at the apt, I'm having a lot of difficulty sleeping, especially waking and not getting back to sleep, that's when my mind is in overdrive! Any tips?

How are others coping with the waiting?

x

 

  • Thank you Jane,

    I didn't have a very good night last night, kept feeling very sick (stress and anxiety I'm sure) 

    I think it's the waiting and the uncertainty again as waiting for another scan, I'm sure I'll feel much better once I have dates to work with xx

  • You are all so very brave. I have my first appointment tomorrow and I seem to be loosing it today. I just know it's bad news. I can't think any different. 
     

    Im sitting here in tears thinking how am I going to tell my children! It's so draining trying to be "normal" when all I want is my mum but sadly she is no longer with us.

     

    I really don't have anyone to talk to so I am sorry to blurt it out on here when we are all trying our best to get through each day xxxx

  • I agree. Everyone here is so brave. I hope you are okay and wish you luck tomorrow. Sometimes I think expecting the 'worst' is sometimes better as you are thinking ahead. 
     

    I know what you mean about draining, I'm exactly the same. The only person I have told is my boss and my partner. None of my friends and family know as I don't want them to suffer the wait with with me. I had a really bad night last night and was awake with worry and during my thoughts I realised that no matter how many times you get told not to worry you will. We all know our bodies and we know when they are different. The worry is not necessarily about the unknown of being diagnosed it's the worry of being in limbo and not knowing your journey. I'm meeting a friend tomorrow and feel like a fraud. I just want to cancel everything and fast forward to my appointment. 
     

    I hope you get good news but remember it's not the end of the world if you don't. Blurt out anytime too if it makes you feel better. We are all here for each other. Sending love xx

  • Good luck for tomorrow please keep us updated when you can. 
    I am still waiting fo my first appointment which is a week and a bit away. 

  • Thank you all very much for your good wishes. I had a very bad morning. I agree it is the not knowing - youre head is all over the place! I just want to know now - but I am very scared.

    I will try to be brave tomorrow and will let you know how I get on.

    It is nice knowing we can rant on here because we all understand - we get it.

    Stay strong ladies - love to all xxx

     

  • Thinking of you today xxxx 

  • Thank you all for thinking of me today. 
     

    The ultrasound lady was pretty sure it is a cyst - turns out I have another on that boob and one on the other one!! They did do a biopsy so they can be certain but I feel a lot better. Will be a bit on edge until results are back though. 
     

    I was there a long time about 4 hours as it was very busy - made me realise how many people are going through it. 
     

    I am hoping I can sleep better tonight, and I will let you know when the results are through. 
     

    If you want to know what happened today please ask - I don't want to just put it here and bore you!

     

    We've got this xxxx

  • Fingers crossed. Did they do a mammogram as well ? 
     

    what did you lump fee like, where about was it in your boob.? 

     

    did the biopsy bit hurt much ? 
     

    ps not boring is it good to know what to expect on the first appointment. 

  • Did they say how long results would be? 
     

    is your lump painful ? Sorry for all The questions 

  • First of all I saw the consultant who said she couldn't feel any lump, then had a mammogram. Then before I had the ultrasound I had to have another one as they needed a closer picture of the area. Must admit this worried me a lot. Had the ultrasound and the ultrasound lady carried out the biopsy. No it didn't hurt at all. The most uncomfortable part for me was the mammogram. It didn't hurt really just uncomfortable. The biopsy was a strange experience as I watched it all on the ultrasound screen but it didn't hurt. Just have some steri strips and plaster. They did say I would be sore for a few days and may have some bruising and can't shower for a couple of days but it's worth it to be certain. 

     

    My lump felt deep and I could only feel it laying down. It was to the right side about halfway down on the right boob. It did feel a bit tender but I thought it felt hard but that may be because it was deep. They said it was about 1.5cm. I never had any other symptoms although I convinced myself I did. 

     

    Everyone was lovely especially as they could see I was panicking. 


    The lump was a bit tender - but not painful  results in about 2-3 weeks.

     

    They said cysts are very common so I am hoping the biopsy comes back ok. 

    When do you have your appointment? 

     

    Xxxx