Waiting for breast clinic referral apt

Hi, I've been reading the posts on this forum for a few weeks now, everyone is so supportive and caring, it's hugely helpful full of so many brave and inspiring people.

Last month I found a patch of itchy skin like eczema by my nipple, after looking on Dr google I went straight to the GP. After hydrocortisone cream didn't much resolve it I was referred to the breast clinic, GP also thought she could feel a lump, but could be thickening (I can't feel it). Anyway, my apt is next Thu. The waiting is very hard, emotions up and down. One moment I'm in control, the next not.

From this site I'm aware of what to expect at the apt, I'm having a lot of difficulty sleeping, especially waking and not getting back to sleep, that's when my mind is in overdrive! Any tips?

How are others coping with the waiting?

x

 

  • Hello I am new to this site too and like other ladies waiting for biopsy results for breast cancer . Besides myself with worry no sleep shaking and no eating . I know everyone different but trying so hard to stay positive. Several mammograms ultrasound and like another lady said I saw the radiographer and she was lovely then at results her tone changed. Was in shock and desperately needed my mum who has passed away. Can anyone recommend someone to talk to ie Macmillan Breast cancer care my mind is fearing the worst.  Also getting worried about being a burden on partner and friends . Wishing you ou all lots of love .. and wishing you all the best

  • Hi rosierita

    thanks for your reply, I'm sorry to hear you're going through this. Do you have a date for your results? The waiting is awful and we all try to stay busy and positive but it's hard. Im sorry to hear you lost your mum. Is there any friends or family members you can talk to? You won't be a burden. Chatting on here will help to. It's a time when we need to reach out. I don't know anything about the Macmillan nurses but do you have a contact for the nurses at the hospital? Perhaps they could advise. Sending you lots of love and hugs virtually. Jackie x
     

  • Hi Jackie... yes I now have an spot booked for Wed 20th yo get results. It all feels like a dream and am struggling not eating very much or sleeping. I expect we are all the same ... I know everyone says that the waiting is the worst but can't help thinking that I will fall apart with bad diagnosis Wed. I am trying to stay positive and going out for a walk with friends and family s as nd trying to stay active. Yes I def helps chatting yo ladies that are going through this too you don't feel so alone. Thanking for your lovely response .. lots of love and best wishes Rosie x

  • Hello rosierita and Jackieann

    i am in same boat I joined today but posted on an old thread but found this one. My go checked a lump for me this week and then urgently referred me to the clinic. 
    My lump is firm immovable and doctor was not sure if it was on chest wall or breast tissue.

    I think my anxiety became worse as I expected a don't worry it feels like a cyst or something from gp.

    jackieann I would def try services at your hospital the one I am at has a maggies centre and I know they also put you in touch with other support as I had this when my daughter was unwell in 2015.  Macmillan website also might be able to put you in touch with a local support nurse. Good luck Thursday please post with an update once you've had it.
     

    rosierita good luck for Wednesday and again post with an update.

    it's one year exactly next week since my mum was diagnosed with breast cancer and initially before my own worries I had been worrying about her first check up incase it had returned. Also tO top it off  re applying for my job at my work as they have merged with another company and needed to restructure . Maybe best I've had other distractions but the constant feeling sick is draining 

     

    best of luck to you both xx

     

     

     

  • Hi Rosierita and Lisa

     

    So lovely to hear from you both.

    I'll be thinking of you Wed when you have your apt Rosie at least you'll know what you are dealing with then and try and remember that most cases of bc are highly treatable. My apt is Thu for my referral, do you have your apt yet Lisa?

    The waiting is awful, and yes I agree it's really draining, I try and keep busy with work and jobs at home as much as possible but definately hard to sleep and dipping in and out of low mood. Going to try a long walk this afternoon and hope I get a better sleep tonight. Find myself playing out conversations in the middle of the night about how I'll tell my children (both in their 20's). 

    I've read many chats on here and one thing that stuck in my head was "life is too short to let it be ruled by cancer". Not easy to follow all the time but I keep trying to go back to it in my mind. 

    Wish I could fast forward to thu, scared for what may come but want to know what if anything I'm dealing with, convinced myself there is something wrong, don't know whether it's instinct or if I'm overthinking. Time will tell.

    Sorry to hear about your stress at work Lisa, that sounds frustrating, I hope it goes ok for you, you really don't need the added strain at the moment.

    love and best wishes to you both, let's keep each other posted. We can get through this difficult time together

    Jackie xx

     

  • Hi Jackie Anne... I am exactly the same as you sore nipple doctor initially gave me hydrocortisone cream didnt clear went back and she felt a lump.... ladies it def feels better chatting i dont feel quite so alone ...especially in the middle of the night when your head goes to some places it shouldn't, wishing you lots of love and best wishes please keep in touch Rosie xxx

  • Hi Jackie, 

    I'm in the same shoes, I'm 24 and the doctors have found a lump after going to them for breast pain, I have had my referral and await my appointment with the breast clinic within 2 weeks, emotions are all over the place, I'm trying to stay positive but it is very hard. 

    It's so nice to see the support of other people! 

    how are you getting on?

    Emily x

     

  • I'm also on this rollercoaster. My appt is on the 26th at a one stop breast clinic. Mine is on the back of a CT scan that shows enlarged ancillary lymph nodes on the right hand side. The positives are that there was no breast mass shown or anything anywhere else. Well maybe a small cyst near my pericardiam  ( that will be the next thing to be looked at )

    I am 49 and a mum to a 8 year old and the dark thoughts running through my head are all consuming

    Sending love and positive thoughts to all the other ladies on this unwelcome rollercoaster.

     

  • Hi all

     

    Hate living wishing time away it's rubbish but until my apt is in I would rather live and not see anyone. I don't have my apt yet. I called clinic thurs but the consultant hadn't assessed gp referral and unfortunately the nurse on phone told me the current wait is 3 weeks for urgent :cry:

    Emily hope your apt is quick in coming.

    Booboo820 and Jackieann I also have children 2 daughters almost 8 and 8 months.

    my 8 year old had a brain tumour at 2. Nothing could have prepared me for that. I'm so anxious I want to be around to make sure she is ok as she doesn't fully even know what happened to her yet so the thought of being ill myself is making me so sick with worry. However I know when something happens the strength from somewhere arrives and you just keep going. It's the waiting that is the worst.

    sorry for the depressing thoughts but I'm trying to be upbeat for anyone else who knows (not many but my mum/husband etc) but it's bloody hard.

    love and positive vibes to you all and let this week be a quick one for all xxxx

     

     

     

    jackieann I am the same of what I would tell my daughter 8 and I have an 8 month old too. 

  • Hi ladies,

    I have recently been where you all are and experienced the exact same rollercoaster of emotions. I got my biopsy results on 6th October which unfortunately showed I have breast cancer. I had surgery very quickly on 11th October and go back for full results on 20th. I can tell you now, you will be fine, you'll get through whatever is thrown at you. I was planning my own funeral but then realises I know quite a few women who have been where I am now, and they're all still here including my mum and my sister. I know the wait for results etc is agonising, but you are stronger than you think and you've got this! Wishing you all the very best.

    Jane xx