Waiting for breast clinic referral apt

Hi, I've been reading the posts on this forum for a few weeks now, everyone is so supportive and caring, it's hugely helpful full of so many brave and inspiring people.

Last month I found a patch of itchy skin like eczema by my nipple, after looking on Dr google I went straight to the GP. After hydrocortisone cream didn't much resolve it I was referred to the breast clinic, GP also thought she could feel a lump, but could be thickening (I can't feel it). Anyway, my apt is next Thu. The waiting is very hard, emotions up and down. One moment I'm in control, the next not.

From this site I'm aware of what to expect at the apt, I'm having a lot of difficulty sleeping, especially waking and not getting back to sleep, that's when my mind is in overdrive! Any tips?

How are others coping with the waiting?

x

 

  • Hi all

    This forum really is something, you are all so brave and supportive, we really do benefit from chatting on here and understanding what each other are going through. I'm in awe of you all.

    We will get through what ever is thrown at us and you're right we are stronger than we think but this forum is great for when we feel scared and alone.

    You're all amazing.

    I am wishing this week away, I'll be both releived and scared to finally be at apt and start to see what may be going on. Feels like months already waiting, not the few weeks it really has been .

    My girls are both in their 20's and not living at home so I've been able to keep this from them for now, Lisa, it sounds like you've been through so much already I'm sorry to hear your daughter was so poorly. 

    I's hard to find the words of encouragment as there are so many unknowns but we can help each other through this and come out the other side.

    one day at a time, one step at a time  

    love to all 

    Look after yourselves

    Jackie xx

     

  • Hi all

    I found a lump in my right breast by chance a couple of days ago and went straight to GP. She felt it too and has referred me to the breast clinic. I am still waiting for the appointment and going out of my mind with worry. I only found it because it felt tender. GP said it is moveable. I know I shouldn't but I keep feeling it and I think it feels deep and not moveable to me - but I'm no doctor. I am just petrified. I also know I shouldn't keep googling but I can't seem to stop myself!

    Thank you for listening xx

  • Hi Kate,

    The waiting is by far the worst of it all. Once you know what you're dealing with, good or bad, the anxiety will reduce significantly. Chances are, what you have is a cyst and they can feel like you describe. Most lumps are benign and the chances of you having cancer is small. Try to hold that thought. I had a local wide excision to remove a small tumour last Monday and get the histology results this Wednesday. I was the same as you but now I know, I am remarkably calm and realise that I will be treated and still have a life. The NHS are truly amazing, I have been so we'll looked after. Take care. 

    Jane xx

  • Hi Jane,

    Thank you so much for replying. 
     

    I just want to know so I can get my head in gear! One minute I'm positive the next fearing the worst. 
     

    I am sorry to hear of your diagnoses but your strength and positivity seems immense so I know you will get through this. 
     

    The comfort that you all bring to each other is lovely to see. It's so hard not being able to talk about it at home because of the children but nice to know that I can talk to people on here who understand the worries. 
     

    Love to all xxx

  • Hello kate789

    I am the same , one minute totally fine next minute worrying again in a dark place.

     

    janeru that is the best thing about this forum the people who are strong and show even in the worst case the treatment is managed well and it's manageable and the amount of support is so nice to read.

     

    I am using my nervous anxiety to try and get a good tidy of the house..things I have out off for a long time being cleared away and now my daughter wants her Halloween decorations up so I'll go for that another distraction.

     

    My old boss always says to me you're in control of how you feel about things....easy to say when not waiting for appointments and it's hard to stay positive all the time as you then don't want crushing disappointment 

    xxxx

  • Hi,

    feel like I'm jumping on this, but had my breast clinic referral appointment on Thursday after having some breast pain and then finding a lump. In my mind I was sure they'd say that it was a cyst and send me on my way, so felt shocked when they wanted to take biopsies from my breast and lymph node. I'd been referred for an MRI scan and was surprised when they called me the day after to book me in (is it normal to be this quick?) so have that later on today. 
    All I have is worst case scenarios running through my mind have two children 8 and 3 and just so scared. xx

  • Hi Lisa

    Do let us know when you get you're appointment. My GP said to call the clinic tomorrow if not heard from them.

     

    I almost can't be positive because then I'm sort of preparing for the worst but I know that's no good. People say why worry about something it might not be - but it might be. 
     

    Im trying to keep busy too. My children are in their teens - pretending nothing is wrong when I'm crying inside is so hard. I know I need to pull myself together but it was such a shock and I automatically started to mentally plan for the worst.   


    I've scared myself more by reading too much so going to try not to.  Being able to speak to people going through the exact same thing helps a lot!


    Xxxx

     

  • Wishing you all the best for today. 
     

    Let us know how you get on xxx

  • Scan went well, was a little uncomfortable but still a waiting game for results. Hoping that it's not too long as the not knowing seems to be the worst bit doesn't it? 
     

    Hope you get some news from the clinic xx

  • So I just called the clinic and I've been put on the 6 week list in Aberdeen but told it's still marked urgent. Receptionist told me to call my gp if I'm concerned. Have a blood test tomorrow so will ask to talk to him when getting results.
     

    daniali how did you get on?

    Kate789 hope you get yours in the 2 week window.

     

    ladies with apts this week let us know how uuu get on and sending everyone positive thoughts xx