Normal CA125 but still worrying symptoms

Hi,

This is my first time posting. I have had various symptoms for the last few months (urgency for the loo, pressure, fullness and very hard bladder, heavier periods). I wake up in the morning to a very swollen lower pelvis that is rock hard. The doctor sent me for blood tests and my CA 125 came back normal. I've just come back from an ultrasound and feel very un-nerved. I could have read into things as i'm not in the best frame of mind but I definitely got a sense something wasn't right. She kept asking about my blood tests and the results.

Has anyone had normal CA125 levels and then gone on to find abnormalities on an ultrasound? I have read that it can be possible to have normal levels even with cancer. Just wondering how common this is?

Many thanks.

  • Hi Garble44,

    Welcome to Cancer Chat. I can understand this uncertainty must be difficult and I know the waiting for answers is never easy. I'm not too sure of the answer to your question - if you'd like to, you can give our nurses a call to talk things through, on 0808 800 4040 (Monday-Friday, 9-5). It may however be best to wait to find out more from your doctor/specialist as everyone and every situation is different.

    I hope it's not too long to wait to find out more. In the meantime try to keep busy and take things a day at a time if you can.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator