Urgent colonoscopy referral

I have been poorly for 18 months finally after going back and forth for weeks to my gp and A&E they finally decided to refer me on the urgent colonoscopy two week pathway and I'm terrified, I have a strange knot feeling in my colon area that contacts and I can actually feel the area tighten if I touch the area and then it goes away, very small soft stools that I have to go to the toilet multiple times a day to pass. A feeling of constantly needing the toilet 3-4 episodes of filling the toilet with blood. Intense abdominal pain similar to appendix pain and tiredness. Bloating and mucus in my stool and weight loss plus vomiting and flu like feeling. I have had bloods and calprotecin test and ultrasound which came back okay. 
but I literally have every single symptom of bowel cancer there could be, I'm utterly terrified about what the colonoscopy will find as a young mum of 2 and 29 years old this feels like an absolute nightmare. 
my anxiety is through the roof and it actually wakes me up f I try to sleep, I've felt that unwell I've barely left the house in 3 weeks. 

I would love to be able to speak to someone or make friends with others in a similar situation as most people don't seem to realise how scared and unwell I'm feeling including my partner who just says it will be fine it'll just be piles etc, and deep down I have a terrible feeling something is badly wrong. I just wish my GP had listened to my concerns when my symptoms first started or that I had advocated for myself better at the start as I feel like now it's been left outcome isn't going to be a good one. I have a private consultation with a colo rectral specialist tomorrow and I'm just hoping that this provides some reassurance while I wait for my urgent referral.

Charl x

  • Hi, for what it's worth, I think it might be diverticulitis.  If you're bleeding heavily, especially if it's "fresh" blood that does sound like it.  I have diverticular disease and when I had a recent flare the loo looked very red.

    You are very young for it to be colon cancer.  Much more likely to be colitis type of thing like  IBS, diverticulitis or something of that sort. Easier said than done, but try and stay calm.  Do not take any any inflammatory meds (like ibuprofen) or aspirin as this may make matters worse if it colitis or similar. 

    A CT scan is considered gold standard for diagnosing diverticular disease.  But do not panic if you are referred for a colonoscopy either instead or in addition (particularly privately, my experience living in the middle east with all private bed, they will go for the highest test as cost/benefit isn't an issue).  It is used to diagnose DD, the extent etc.  But if you are mid diverticulitis flare then you should not have a colonoscopy and any GI Dr worth his salt will know this.  Push for bloods to check inflammation markers, altho again, I'd be amazed if Dr doesn't do this routinely.  

    Take care, let us know how you get on xx

  • Thank you so much for your reply I have had blood tests which all came back fine I have had a calprotecin test which was fine and abdominal unreasoned, hence why I've had to really push push push for further investigations. I have not got to do a fit test and wait for my colonoscopy appointment. Tomorrow I have a an appointment with a private colorectal consultant so I'm hoping that gives some reassurance x

  • Clear bloods and fit test is reassuring.  Ultrasound is good, but CT is better.  It will get to the bottom of things (no pun intended hahaha) 

  • Haha thank you so much you've reassured me no end. Hopefully my appointments come quickly and I'll keep the forum updated x

  • See my post.too.

    Did you have qfit done ?

    I had private consultant because the NHS wont refer me but the pain is bad. He kept focusing on low calprotecfin and low qfit and negative ct. He said colonoscopy not recommended.

    Im 60 so im high risk but still, i was taken baxk by the consultants conclusions. 

     

  • Hi there I'm sorry to see your gp wasn't taking your concerns seriously, my dad was diagnosed with vowel cancer in 2018 and didn't have to even take a qfit his symptom was feeling like he couldn't evacuate the bowel properly and was referred for a colonoscopy ASAP. So it's a shame you haven't been referred yet I would continue to go to your gp untill you find one egos more sympathetic 
    I only did a calprotecin test and not a fit test that I was lead to belive which lured me into a false sense of security. 
    may I ask what your symptoms were/are. 
    thank you Charlotte 

  • Ahh I see you've already had quite a few investigations done that came back clear but yiure still feeling poorly, sadly having clear test results doesn't magically make the pain go away does it. I'm hoping my results come back as good as yours though as I'm sure that will relive some of my anxiety. X

  • Yes but as you say the condition is still there. Anxiety was attempted label on me but why. Life was good unril this. Who wouldnt be anxious when in pain...lets hope tour tests are good.

  • My FIT test come back positive today. I'm 37 Iv been referred on the 2WW for a colonoscopy. I originally was being checked for ovarian cancer as my left ovary is enlarged and I'm having back pain and bloating.
    Iv not noticed any blood in my stool only extremely loud stomach noises that have been going on for months. She said my FIT test shown blood and inflammation.

    It's this horrible 2ww now. Hope all goes well for you x

     

  • Oh I'm really sorry to hear that and on the other side of things it's good to see that we're not alone in this. 
    my right side pain at one pount was thought to be ovarian however untrasound scan was clear. 
    have you had a date for your colonoscopy appointment yet or are you still waiting? X