LYMPHOMA?

Hi, my name is Maya and I've been worried for a little while. I'm 16 and in June I found that there's a lump on my neck. I wasn't s worried as I had a lot of other stresses at the time and it wasn't on my mind much. However, as time went on I was constantly tired and my hair was falling. Again I put this to stress but my parents asked me to go to the doctor anyway. When I went my doctor (let's say dr. b) wasn't too concerned and said it was probably just an infection or something. He then said that it will be gone in 2 weeks. Dr.b usually makes me uncomfortable as I feel like he is constantly (no matter the issue) brushing me off and making me feel like I'm over-reacting (bc I have severe anxiety). I then made a new appointment with another doctor (DR.O) after it hadn't disappeared in 2 weeks and felt much more heard, I guess. HE felt around the lump (which dr. b hadn't done) and booked me in for a blood test. It came back positive for glandular fever and I was told it was gonna go in 6 weeks. Fast forward to August and nothing has changed except that i have also experienced..uhm... blood in my stool (may be unrelated but scary). Still tired and the lump is still there. I went back and requested Dr.O and he said he doesn't think its anything due to no unexpected weight loss (there was only a little weight loss but it was due to a constant lack of appetite and i was never weighed). But bc of my anxiety he understood that i needed reassurance and booked me in for an ultrasound. I had the ultrasound on my face and neck recently and the sonographer said that they weren't sure but it looks like a huge swollen lymph node and there was one under my jaw that I didn't know about. I was told to come back in December if it's still there and to call for another appointment if it gets bigger. The thing is I have no clue if it's getting bigger or I'm really overreacting like dr. b thinks I am. I've seen a lot of people talking about their experiences with lymphoma recently and how almost all of them were misdiagnosed due to their age and gender (being a female teenager I get a lot of female teenager content). This last week, I have been exhausted. I have never been this tired. I'm so tired that eating tires me out and I can't stop sleeping, no matter how long I've been asleep. And ik what you might think 'oh a tired teenager that's original' but I know my body and this isn't like me. In the past three days, all I could muster up the energy to eat was 4 cans of energy drink and a Lindor. I am tired beyond sleep (which I struggle to get anyways). I just wanted to post this to see if any people diagnosed with lymphoma have ever been in a similar position to mine and to see whether people think I'm overreacting or should keep pushing. Thank you for taking the time out of your day to read this :)

  • Hello TearsAndTravel, 

    I think if this is still making you very worried it would be worth getting another opinion. You can find out more about seeking a second opinion on this page. You should definitely mention to your doctor that you feel exhausted. It's important that you eat healthily as not eating will only make you feel more exhausted and four cans of energy drink and a Lindor are definitely not enough. So do go back to your GP and mention how you have been feeling and how little you have been eating recently. 

    I hope you feel better soon! 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Hi tears and travel!

    isn't it funny that whatever you symptom you might be "missing" there's the answer for nope nothing wrong with you, I've been the same as you got tested for mono in March - negative - I've lossy 4st since last year, unintentionally, I am eating a little less - but my doctors always blame it on that I have 2 kids and don't get much sleep for the fact that like you I am also tired and worn out behind belief- 

     

    my name is Jess - I am 29 - hear is a list of symptoms I've been experiencing- 

     

    neck lumps (submandibular)- swelling everyday for the past year now constantly up like golf balls

    Conjunctival eye cyst - swelling in same eye ball 

    anniscoria of the same eye 

    optometrist recommended in august referral to neaurology (still no referral) as possible systemic issues

    4st wait loss in a year

    occasional bad night sweats (since October last year2020)

    Severe fatigue (I swear I can't cope lol I've had to give  up 2 of my jobs so I only have 1 now)

    Gland in breast swelling daily - put down to hormones - I've now stopped taking the pill which acctually does seem to help - 

    had full blood count - everything fine other than slightly elevated red blood cells and thick blood

    persistant heavy vaginal bleading for 4 months - found a 5 cm cyst on ovary in July (waiting for another scan booked for nov 1st)

    persistent migraines for the last year which nothing really helps 

    I also have been having my hair fall out a lot like you (I'm a hairdresser so that I do know about and it's to much to be normal)

     

    If I was you I would keep trying to get a diagnosis, if you feel there's something wrong, know one knows your body like you, I like you also feel ignored and stone walled by my doctors, I'm tired of it now so I'm telling myself to be more pushy I've done everything they have said so far and I'm not getting better only worse, they can't know for certain just because of our age that we are fine and dandy - they even ignored the advice of the optometrist for me lol!

    anyway, I do hope your ok and get heard! It's nice to know I'm not the only one feeling like a hypochondriac because of the doctors lol! Thanks for the post,

    sorry I'm not helpful but I hope that it at least makes you feel not so alone, and that someone understands how you feel

     

  • Hi! Im so sorry to hear youve also been feeling like this. It really is a horrible feeling to know deep down something is wrong but having no one listen. Ill update you if anything comes from it and I hope you'll do the same!